“My relatives have stopped coming to our place. They don’t tell me anything but I know it’s because of our son, Saksham. Some of them have even asked us to stop thinking of getting him treated - think of him as a curse! But how can I do that - he is as much my child as our daughter,” - Arti breaks down while talking about her 6-month-old son, Saksham.Saksham’s head is growing in size with every passing day, his hands and legs are shrivelling and his stomach is swelling due to a rapidly failing liver. He needs urgent treatment or else he won’t survive.
Saksham’s disease happens to 1 in 3 lakh people - the cure is extremely expensiveTejbhan and Arti were overjoyed when little Saksham was born to them in last year, December. But their happiness was short-lived - their baby boy had to be in the ICU for the next two months. He was severely underweight and had jaundice.
“When we took him home after 2 months we thought all our nightmares have ended. But few months later, we noticed that his head was growing abnormally. He wasn’t even responding to sounds - we realised that he can’t even see us properly. Imagine our fear when we saw our little baby going through all of this!” - Tejbhan, father.
The excruciating pain doesn’t let Saksham sleep at night - he cries all the timeSaksham is suffering from Mucopolysaccharidosis type VI. It is a progressive condition that causes tissues and organs to enlarge and inflamed or scarred. His entire body is in pain - his liver is failing and there is fluid accumulation in his brain. Even the sweetest lullaby can’t put Saksham to sleep.
“The worst part is knowing that there is a chance for my Saksham to get better but we can’t afford it. The doctors have said that only medicines from the USA can cure him but each such injection would cost us $ 2150! The cost will go up to almost Rs 38 lakhs - this is beyond our capabilities.”
Tejbhan has spent over 6 lakhs - is savings are over and he doesn’t have anyone who can help with the huge costs of the treatment.He works in a private company and earns a decent amount to support his family.
“But the last 6 months have been harrowing - every week we have to rush Saksham to the hospital. He either has fever or diarrhoea or some other complication. I haven’t been able to go to work regularly, Arti needs my help with the daughters. But they have been deducting from my pay - the money I get at hand is nominal. The only way I can save him is with your help.”
Saksham needs urgent help but these desperate parents have no means to save him - you can help
The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.