Even Drinking A Sip Of Water Makes This 6-Month-Old Bleed Because Of A Rare Disease | Milaap
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Even Drinking A Sip Of Water Makes This 6-Month-Old Bleed Because Of A Rare Disease

“In a day, I wash his diaper cloth about 12-13 times. The blood reminds me that Abdul is running out of time. Every day he’s losing more blood than his body can make.” – Aleem, father

One look at baby Abdul, and you know that he’s suffering every minute of the day - his loud, painful cries are proof enough. He can’t even drink a sip of water without bleeding in his urine. Every time he passes stools, which is at least 12 times a day, there’s blood. The doctors have told Aleem and Nasrath that his disease is so rare that only about 150-200 people in the world have it. Abdul needs a bone marrow transplant at the earliest to survive.

Every time they took him to the doctor, it was a different diagnosis

For the first 3 months of his life, baby Abdul was growing well. He was 3 kgs at birth, a very healthy sign. However, everything changed when he turned 4-months-old. He started having rashes all over his body, he had a fever of 103 and would spend his night crying out in pain. This went on for 2 months.

“The rashes started appearing on his head. We took him to 8-9 hospitals and everywhere it was a different diagnosis. Sometimes it was a blood infection, sometimes constipation and even malaria. No one could tell us why our son was so sick all the time.”

The parents blame themselves for their child’s suffering

“He has a genetic disease. We found out only after 2 months of him being sick that he’s like this because of us. I wish I was suffering instead of him. When I held him in my arms for the first time, I promised myself that I will never let anything or anyone hurt him. I have failed.” - Nasrath, mother

Abdul has a rare disease called IL-10RA that doesn’t allow his body to produce enough blood and is making his immunity very low. At just 4 kgs, he is underweight. He can’t even drink his own mother’s milk.

They don’t have enough time or help to save their only child

Aleem works in a BPO and earns around Rs. 15,000 per month. With the savings from his job, Aleem paid over 5 lakhs so far to find out what was wrong with Abdul. He does not have enough time or help to arrange Rs. 28 lakhs in the next few days.

“I work the night shifts and come back early in the morning to be with my son. This is the only way I can keep him in the hospital, even if it’s for a day longer. The doctor said we should not wait for the transplant any longer, but I don’t have anybody else to help us right now. Please, my son needs your help to survive.”

The disease is breaking the 6-month-old from inside. He can’t go on any longer without a bone marrow transplant and needs your help urgently.

Supporting Document

The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.

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