He was just a year old when it all started
The kid has a rare genetic disease and it's killing him
His father is an IT technician and His mother is a home-maker. The family’s income is barely enough to cover Pratyush’s everyday medicine and frequent blood tests.“At first, we didn’t understand anything. Adrenoleukodystrophy is an extremely rare disease and it happened to our son. I couldn’t do anything but curse our lucks. But eventually, as I managed to grasp everything that was going around, I figured that I have to be strong for my son's sake, and that is all I am doing at present. My only concern is arranging the funds required for his transplant, now that the doctors have assured us of its success rate", said the father.
He may not get another chance to surviveFor Pratyush who has been suffering from this deadly disease since he was 1-year-old, a bone marrow transplant (BMT) is the only option available.The estimated cost of the transplant is Rs 35 lakhs. As of yet, the family has already spent close to Rs 4 lakhs on Pratyush’s treatment.
The doctors have recommended the transplant at the earliest as the ailment is only making Pratyush weaker day by day.
“I am his father, of course I am doing everything in my power to look after my kid; to ensure his well-being. But Rs 35 lakhs is beyond my humble capabilities. I would give anything to save my son, but I have nothing left now. My relatives have been helping me to keep the treatment going, but this amount is far beyond what any of us can put together.”
“He’s very weak. One moment he’s playing and the next he is on the floor vomiting his guts out. Most days, he is just writhing in uncomfortable pain due to high fever. He’s barely three and should be full of energy. But his condition makes it difficult for him to get out of the bed most days"
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The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.