3 severe conditions have left him bedridden
“Just a few weeks after her birth, everyone started noticing that his head was getting bigger than the rest of his body. We didn’t know what or how that was happening, and we rushed him to the hospital. After the tests were done and the results came in, the doctors tried to explain to us the ailment but we just couldn’t understand it. All we knew was that he needed surgery for it but no matter how much we tried, we couldn’t get him treated.” - Sainath, father
Pranit suffers from Congenital Hydrocephalus, a buildup of excess cerebrospinal fluid (CSF) in the brain at birth. Along with that, he suffers from a Chiari malformation and Syringomyelia, both of which affect the brain and the spinal cord. His sickness has snatched his childhood from him.
Only surgery can save his life nowOver the years, Pranit’s problems only grew. Because of the extra weight of his head, he cannot walk, eat on his own, or do any other routine activity. He is bedridden and barely able to move his legs due to the cyst in his spinal cord.
“We tried sending him to a regular school. But when he was in Class 1, the school teacher asked us to not send him unless someone can accompany him to school and be with him the whole time. But how is that possible? Every time Pranit sees someone his age, playing with other kids in the neighbourhood, he gets disheartened. He asks me ‘When can I play like them, mumma?’, and I have no answer for that. But this surgery can give him a normal childhood.” - Vidhya, mother
These parents can't afford the multiple surgeries neededPranit needs 3 surgeries, over a period of 2 months, to completely recover. The treatment will cost over 20 lakh rupees. For a family that eats hand to mouth, this sum is impossible to arrange. Sainath is a daily-wage labourer who hardly earns 250 rupees a day. With the ongoing treatment in Nagpur, he is barely able to manage even the expense of food.
“He is our only child and we want him to live a healthy and normal life. We tried relentlessly for the last 7 years to afford the surgery but were not able to, you are our only hope. Doctors say that if we delay any further, it will affect his mental state as well. I wish I could do something to afford this surgery but...but I am helpless. Please help us!” - Sainath
Click here to donate.