“13 days ago when we brought Musab to the hospital, his condition was so critical that they immediately admitted him to the ICU. He was given no food, not even water for the last few days. Doctors had said they might not be able to save him. But by God’s grace, he showed some improvement and he has been given 10 ml of water since yesterday but that doesn’t mean that he is out of danger now,” - Mazhar, Musab’s father.
The 1-year-old is fighting a dangerous disease and his only chance at survival is with an urgent bone marrow transplant.
He has been in and out of ICU since he was just 20 days oldA healthy child was born to Mazhar and Amreen and they couldn’t have been happier. But Musab was only 20 days old when he caught fever and severe pneumonia. He had to be immediately admitted to the ICU.
“This was the first of his many visits to the hospital. Every 15 days we had to rush him to the hospital, his infections seemed to never go away. And this time, his diarrhoea and infection in his blood was so severe that we thought we would lose him. He doesn’t have much time and now any further delay can turn fatal for my son,” - Mazhar.
The disease is spreading in Musab’s body very fastLittle Musab is suffering from chronic granulomatous disease - an inherited immunodeficiency disease which increases the body's susceptibility to infections caused by certain bacteria and fungi. It is so severe that when Musab was given the BCG vaccination, he contracted tuberculosis. His intestines are affected, his lungs are weak. There’s a port on his neck through which he is administered regular injections.
“My Musab, my only child - he is fighting death. Who would have imagined that Musab’s life will be hanging by a thin thread. Everything depends on the bone marrow transplant now but the cost... it’s so much for us,” - Amreen.
How you can helpMazhar sounds tired and helpless when you ask him about Musab. And that’s not how a father ought to feel about his only child. His days are filled with worry and his nights are filled with tears when he prays to Allah to save his son.
“I have spent over 15 lakhs on Musab’s treatment. I have exhausted my savings, sought help from my relatives, yet it’s not enough to save my son. The price of his life - it’s 22 lakhs. For someone who works in a factory, the amount is huge. I beg all of you to come forward and help me save my only child,” - Mazhar.
Little Musab has not known a life free of pain. His parents have tried everything yet nothing seems to cure him of this dangerous disease. With your help, they can save him.