“He was only 5 when he left us, there was nothing we could do. By the time we got to know about the disease, it was already too late. I can’t let the same happen to Himanshu, I have to do something to save my son,” - Pothaiah, father.
We couldn’t believe the disease had come back to haunt our lives, again5 months back, Ramasubbulu noticed that Himanshu was very restless. He was itching his entire body - he was itching till blood oozed out of the wounds.
“We were not new to the symptoms. This is exactly what had happened to our first child. This time we didn’t waste a single minute. We took him to the hospital and several tests later, our fear was confirmed,” - Ramasubbulu, mother.
Himanshu tested positive for a genetic liver disease. The same disease that killed their first child, the same disease that runs in the family and has killed other male child in their family.
This disease is aggressive in nature - it is spreading fast in Himanshu’s body. Patients with this disease live only till the age of 5. The only cure - an immediate liver transplant. It would cost them 18 lakhs but Pothaiah doesn’t know if he can afford it.
“I look at my son, crying and in pain. His stomach has started swelling up and is hard. He can’t digest anything, he constantly passes watery motions. But the itching is the worst. It’s been days that he has slept properly. I know there is hope for him but still my hands are tied. Without help, I can never arrange so much.”
Pothaiah is a professor at an engineering college in Hyderabad. He has a decent income and was doing a good job taking care of his family of 4. This was till Himanshu was diagnosed with this dangerous disease. He has spent a lot on tests and medicines. Now they are pinning all their hopes on you.