It is a curse to live for years, just battling death.My name is Safikun. I am Hafi’s elder brother. We are from Assam. For ages now, I have been seeing our eldest brother Rabin fight the same condition. We could do nothing for him. He is now 31, and still lives like he is dying everyday. I thought life could be different for my little brother though.
“Hafi was just a 1-year-old when he was diagnosed with Thalassemia Major. This means he needs to be given blood externally to keep him alive. His own blood becomes toxic for him, and he cannot survive on that,” Safi recalls.Despite the weakness, Hafijur still tried to go to school whenever he could. Bright and curious 14-year-old Hafi got promoted to the 7th standard this year. For the past 6 months, however, he has neither gone to school, nor met his family. Away from his home and his friends, Hafi has been living with his older brother in Bangalore, hoping the illness will be cured soon.
I have been donating blood to save my brotherMy father runs a vegetable shop in Assam. Our household income is between Rs. 8 and 10,000. With my elder brother in this condition, he also cannot work, and needs regular transfusions.Our Assam government supported us a lot. It is only because of them that my brothers are still alive. I give blood for Hafi’s transfusions, but can do so only 4 times a year. We heard that a Bone Marrow Transplant can save him.
I was a perfect match to be the donor for the transplant. With the help of government funds, he did undergo the surgery, but unfortunately his body started rejecting the transplant. Now, there is a need for an urgent Bone Marrow Transplant again. The procedure will cost around Rs. 24 Lakhs. My family has never even seen this much money. On the other hand, Hafi is hopeful, waiting to recover and go back home to Ammi and Abbu.
How you can help.My brother can also have a normal life, a normal teenage: without fearing death and having to go to the hospital every week. I have seen my elder brother’s life get wasted before my eyes, but cannot let Hafi also get pushed into this struggle.
Doctor says that there are kindhearted people who come forward and help people like me and my brother. Your support will help me take my brother back home free from this curse
The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.
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