“10 days ago while he was crawling around the house and playing with his toys, he suddenly fainted. And this time, for longer than usual. His nails and lips turned black. We didn’t know why this was happening to our baby.” - Asmatullah, father
Fareed has visited many doctors in the last year. There were times when he would cry endlessly for no reason, get tired and faint. It would take him 15-20 minutes to get back to normal. Unfortunately, the local doctors in their hometown, Madhubani district, Bihar, couldn’t tell what he was going through.
However, Fareed’s condition was only getting worse. A few days ago, he was taken to another hospital where Asmatullah was asked to immediately take him to Delhi for treatment – his son’s heart is failing.
Fareed has a condition called Tetralogy of Fallot, it is a combination of four heart defects present at birth. It causes oxygen-poor blood to flow out of the heart and to the rest of the body. Only a surgery can save him.
“His heart beats so fast…even when he’s not playing. It’s so scary,” says Mehzim, Farid’s mother who still doesn’t completely understand her child’s condition is only hopeful that this his year long struggle comes to an end soon. She likes keeping him close to her whenever she gets a chance to.
Ashmatullah works as a mechanic in Daryaganj area of Old Delhi. He lives in a rented shared accommodation in the nearby area while his wife and child live in Bihar. Since they are all here now for the treatment, he has arranged a separate place to stay for them which is already costing a lot. He earns enough to feed them properly but funding this treatment is currently beyond his earnings.
Fareed likes to play with anything he sees around him. Even when he goes for a check-up he takes his doll with him
Farid needs an urgent surgery. The doctors are certain that the surgery is going to make a huge difference in his life.