"His entire body is covered with painful boils and blisters. He just can’t stop itching, he itches so much that it bleeds and…and I am unable to stop him. He cries and screams, but nothing will take the pain away. He is just 2, he doesn’t understand. I constantly have to keep an eye on him otherwise his itching turns into infection very soon. I can’t hold my tears back when I look at him. He is going through so much.”- Masuma, mother

Dawood is suffering from DOCK 8 immunodeficiency syndrome. This protein plays a critical role in the survival and function of several types of immune system cells and attack foreign invaders, such as viruses, to prevent infection. Due to its deficiency, Dawood is having life-threatening allergic reactions.

I am just a daily wage labour, a painter. How will I…
Dawood has been suffering from this condition since he was 9 months old. The parents took him to so many different doctors for his skin condition but no medicine could cure him.
“I never really thought it could be something internal and neither did the doctors find out. For 2 long years my little boy suffered in pain and misery. And now even though I know the cure, I…I can’t afford it. Whatever I do, I will never be able to arrange so many lakhs, let alone thousands.”- Bilal, father

If we fail to afford the transplant…
“Doctors say that only a bone marrow transplant can save him. If we fail to afford it, my son’s condition will get worse and he will never be able to live a normal life like other kids do. He has a live every moment in pain and suffering. But the scariest part is that it can lead to cancer. If…if that happens, I will never be able to forgive myself.”- Masuma

My younger son also has the same disease
In these two years, Bilal somehow managed the medical cost with the help of friends and family. They are devastated and losing their hope. And to add to all this, their younger son, who is just 6-months-old, has been diagnosed with the same ailment.“I just don’t know what to do anymore. My elder son is already suffering so much, now my… the thought of my second child going through the same is unbearable. What is my children’s fault?”- Masuma
