“He has been suffering in pain all his life. It’s almost been 3 years, but he’s still as scared as he was the first time he got injections. He’s so terrified that even the sight of a hospital gown makes him wail. He screams and cries, nothing can calm him down,” – Rameshwar, father
Little Ashwin turns 3 this June, but Usha and Rameshwar can’t celebrate. Ashwin is very sick and only a bone marrow transplant can save him. Rameshwar works as a delivery executive for Amazon. He now works long shifts and weekends to ensure that his son’s blood transfusions aren’t stopped. It’s the only thing keeping him alive. Unfortunately, Rameshwar has nothing left to save his son’s life.
Ashwin had to miss this month’s blood transfusion because they don’t have anything left with themAshwin was only 2 months old when he was diagnosed with Thalassemia, a severe blood disease that affects the body’s abilities to produce haemoglobin. Children with this disease often experience fatigue, weakness and slow growth. Ashwin has been undergoing blood transfusions every 20 days, until this month.
“I couldn’t afford this month’s transfusion. I'm wracked with guilt, but I have nothing left with me. We’ve been spending over Rs. 5,000 every month on his treatment, but after years of expenses, I have no savings. My income isn’t enough to even afford his next blood transfusion, let alone his bone marrow transplant.”
The only time he leaves the house is to go to the hospitalAshwin loves to play with his older brother Ranvir, but he can’t for long. He can’t go to school like him or play in the park with friends. Ashwin is confined to his house.
“He watches children playing outside, parents taking their kids for ice cream, he can’t do all that. He can only play a little at home before he gets tired. When I come home from work at night, I see him lying down on his bed too weak to even move,” – Rameshwar
Despite working day and night, his father doesn’t have enough to save his lifeRameshwar and Usha both are working parents. Nowadays, no matter how much they want to be with their sick child, they are hardly at home. Usha works as staff at a hospital in Mumbai and even works nightshifts sometimes. All Rameshwar wants is to be there for his son when he needs him the most, but he can’t.
“I want to be there through every hospital visit and blood transfusion. My son needs me, but only if I work will I be able to save him. Unfortunately, no matter how hard I try, I’m falling short.”
This is his only chance to fight this disease
“The older Ashwin gets, the risk of getting the transplant only increases – this is the right time for him to get it. He can survive.” - Usha
Ashwin is barely 3-years-old and has only been in pain till now. Every hospital visit begins and ends with him in tears. The few days of happiness he has soon turn into exhaustion and pain. You are Ashwin’s only hope to survive this blood disease.
The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.
Click here to save Ashwin