“He stopped going to school because his friends don’t go near him. Everyone treats him like an untouchable. Can you imagine the impact this has on a 10-year-old?”
Thanseeh was just 3 months old when he began to exhibit sores on his body. As a baby, he would scratch himself constantly until he bled. His father, Mustafa Thottarathodi Poduvannikkavil, rushed him to every doctor in the town until he was shattered by this diagnosis he could not quite understand.
“Wiskott-Alrich Syndrome, they said. The doctor took quite some time to explain it to us. Thanseeh’s immune system is very weak. He has eczema and the wounds themselves itch and hurt so bad that he continues to itch over them causing them to bleed more. They hardly ever heal. It is harrowing to see our child dig his nails into his body trying to stop pain and cause more. We used to bind his hands to stop him from doing it, but the feeling becomes unbearable for him and he begins to scream.”
“He used to go to school. But, the way others treated him, the physical environment, everything took such a great toll on him that his condition got worse. We decided to keep him at home.”
“Our community has come forward to help us in this situation. People cannot stand to see Thanseeh suffer like this and just wither away. They have formed a committee to crowdfund for us, and raise enough for this surgery.”
“Our boy is both physically and emotionally scarred. This will give us a chance to heal him.”