“Even after staying in the same city, Sangeeta and I spend nights in the hospital. We eat maximum once a day so that we can cut the costs and save more for Shaul’s treatment. Even this doesn’t seem to help. I still don’t get what has my 13-year-old done to deserve suffering from something like cancer!”
Not being able to play cricket makes Shaul sadder than needles and chemotherapyJohnson and Sangeeta live in Vasai, Mumbai with their 3 children. Johnson goes fishing on a rented boat and is away from home for almost 15 days at a stretch. Sangeeta sells fish and is away from home all day. In their absence, their 16-year-old daughter, Sara had become the parent for Shaul and 12-year-old Paul.
“I am educating my children so that they have a better life than I do. Shaul has just been promoted to the 9th grade. His love for cricket is unbeatable. Needles and his physical pain don’t make him as sad as he is because he can’t play his ‘gali cricket’.”
They never thought chest pain could be a sign of cancerEven when they are not home, Johnson and Sangeeta never had to worry for their children. The siblings took care of each other well. Only 15 days ago, when Shaul completed his daily cricket dose, he complained of unbearable chest pain. The parents thought he must have been hit by a cricket ball. Despite their reluctance, Shaul’s painful cries forced them to take him to the doctors.
“Neither the X-ray nor the CT scan could tell us what was causing my son so much pain. We just brought him to a better doctor to ensure everything is fine. I knew something was not fine when they told us he had to be admitted to the hospital. But blood tests were scarier than my worst nightmare. He has Ph+ acute lymphoblastic leukemia. It is a rare form of blood cancer but if caught early, it can be cured."
Medicines could keep the chest pain at bay only for an hour, and then he would again be in the insufferable pain. Shaul’s hemoglobin level had dropped so much that he felt very dizzy. It is very risky to even let him use the washroom alone during such times. Either of his parents has to accompany him.
“Shaul’s school reopens soon. He is in such a stage of his life, that he thinks if he can’t go to school he’s a loser. We’re scared that he’ll lose his confidence forever. He wants to go back and play cricket and do everything his friends are doing. None of our words comfort him. I feel so helpless.”
The parents don’t even have the money to go home and come back
“When Shaul was admitted for 15 days, we had no money to pay the sky-high bill of Rs 1.3 lakhs. I am really grateful to the hospital for letting me go back and arrange the money. I have begged from every villager and relatives because I needed the money in 3 days. It has become my nightmare and keeps haunting."Johnson and Sangeeta have to sit in the hospital corridors all day because if they go back home they have no money to come back. Both the parents can’t go to work because they have to stay in the hospital. Shaul is undergoing chemotherapy and the parents are running out of money. They even skip meals to save each rupee that might help the treatment.
"We have already spent Rs 1.5 lakhs so far in less than a month. I don't even earn that much in a year. Even my village people have run out of money while helping me. I can't even go back and ask for help. The medicines and chemotherapy are unaffordable, and all other options for financial assistance take time. I don't want to pause treatment or take him to some other hospital now because I believe this is the best place for him to get cured. All I need is some help."
How you can helpThe teenager Shaul, has been forced to give up everything he loved to do just to stay alive. The poor parents want to save their son at any cost. But the cost required to save him is Rs 19 lakhs.
Your support will help Shaul study and play cricket again.
The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.