Parents Starve To Feed 1-Year-Old Who Could Die Of Malnutrition | Milaap
This is a supporting campaign. Contributions made to this campaign will go towards the main campaign.
This campaign has stopped and can no longer accept donations.

Parents Starve To Feed 1-Year-Old Who Could Die Of Malnutrition

“We eat leftovers or go completely hungry on some days to make sure our baby gets nutritious food – eggs, dal, fresh vegetables and fruits, etc – but nothing is helping him grow. He is always hungry and eats whatever we give him without a fuss, but then passes watery stools within minutes of eating. He is just 6 kgs now and is losing weight rapidly. Holding him feels just like lifting a feather,” - Asha, mother of 1-year-old Vishvaraj Dighe.



Baby Vishwaraj has Wolman’s disease, a disorder characterized by the deficiency of an important enzyme involved in the breakdown of fats in the body. As a result of this, this little one’s liver and spleen are growing bigger in size with every passing day due to the build-up of fats and cholesterol. This is what is causing his stunted growth, and without proper medical intervention, it can even cause death. There is only one cure for his condition – a bone marrow transplant, but his parents, who are reeling under poverty, cannot afford it.  

This baby started spending more days at the hospital than at home

Vishwaraj is Asha and Vinayak’s first baby, born to them right after they celebrated their first wedding anniversary. “He was God’s wedding gift to me,” says Asha. From the moment they saw their baby’s cute face, she and her husband had sworn to take care of him well – even if that meant spending beyond their means. Everything went well until the baby turned 6 months old and began suffering from recurrent cold and fever. Doctors kept saying it was pneumonia and Vishwaraj started spending more days at the hospital than at home.



 “We began to doubt whether it was just a case of bad cold because it kept happening every other week. We pushed the doctors to take more tests and that’s when they diagnosed him. We had not even heard of the disease. We still don’t understand the specifics. We only know that our baby’s life is in danger and that we need to save him at any cost,”-Vinayak, father

Baby Vishwaraj cannot even roll over on his own

Due to weakness as well as the pressure that his enlarged spleen and liver are putting on his upper body, Vishwaraj has not even started to roll over to one side of the bed. He cannot sit up on his own either. There is little to no chance that he will start walking soon either. He needs his mother for everything – from helping him pick up toys to play with to feed him as his palms have no strength. He keeps crying and wants his mother to rock him all night. As his blood levels can dip all of a sudden, doctors have also asked her to monitor him throughout for signs of paleness.  

“I cannot leave his side for a minute – I take him with me everywhere I go, be it to the kitchen to cook, or the backyard to pick up firewood. If something happens to me, I don’t know how he will survive,”-Asha, tearfully

He has been begging people in his village to help him, but nothing has come so far - he needs your help

Vinayak is a farmer who earns less than Rs 80 a day. His son’s diagnosis came as a shock to him, and he has been struggling to arrange money for his regular hospital visits and tests ever since. He has been begging people in his village to help him, but nothing in vain.

“When people ask us what is wrong with our baby, we are always at a loss of words. We try to explain his condition in the best possible way we can, but many are not convinced. They think it is not a serious disease. I am completely helpless at this point – please help me save my son,”-Vinayak
Your kind contribution will ensure that this baby boy gets a bone marrow transplant and survives


Estimation letter
Estimation letter
Ask for an update
12th September 2019
Dear Supporters,

Thanks for all the love and support shown towards Vishvaraj.

We have an update to share with you today. Vishvaraj Dighe had phenotype and enzyme diagnosis of Wolman's Syndrome from Laboratory tests in India. The diagnosis of Wolman's Syndrome was not confirmed on Genetic Test. Further, enzyme tests performed in Manchester ruled out the diagnosis of Wolman's Syndrome. Hence he will not be requiring a transplant.

At Milaap, we release funds raised only against utilization for the intended purpose, supported by a treatment update from the doctor as well as bills and invoices given to us. Hence no funds have been transferred utilised for Vishvaraj.

We do understand that some of you may like a refund since the original purpose was not met. - 100% of your contribution will be refunded - please reply to this email by Thursday 19th September.

Alternatively, 

We are also sharing links to the fundraisers of two more children who are also in need of urgent support. You can also choose to direct your donations to one of these children:

https://milaap.org/fundraisers/help-geet-patil

Geet Patil is 9 years old and is suffering from Aplastic Anemia. She is in urgent need of a Bone Marrow Transplant to survive.

https://milaap.org/fundraisers/help-aarohi-mandal-1

Aarohi is the 5-year-old daughter of a farmer couple from a small village in Bengal and she is suffering from Blood Cancer. She too needs to undergo a Bone Marrow Transplant soon to survive.

Note: For donors seeking refunds to donations made via bank transfer or UPI to the account number and UPI ID mentioned on the campaign page, we would request you to share the account details with us by replying to this email or reaching out to us on feedback@milaap.org.

Thank you all once again for the support.

Regards,
Team Milaap
Dear Supporters,

Thanks for all the love and support shown towards Vishvaraj.

We have an update to share with you today. Vishvaraj Dighe had phenotype and enzyme diagnosis of Wolman's Syndrome from Laboratory tests in India. The diagnosis of Wolman's Syndrome was not confirmed on Genetic Test. Further, enzyme tests performed in Manchester ruled out the diagnosis of Wolman's Syndrome. Hence he will not be requiring a transplant.

At Milaap, we release funds raised only against utilization for the intended purpose, supported by a treatment update from the doctor as well as bills and invoices given to us. Hence no funds have been transferred utilised for Vishvaraj.

We do understand that some of you may like a refund since the original purpose was not met. - 100% of your contribution will be refunded - please reply to this email by Thursday 19th September.

Alternatively, 

We are also sharing links to the fundraisers of two more children who are also in need of urgent support. You can also choose to direct your donations to one of these children:

https://milaap.org/fundraisers/help-geet-patil

Geet Patil is 9 years old and is suffering from Aplastic Anemia. She is in urgent need of a Bone Marrow Transplant to survive.

https://milaap.org/fundraisers/help-aarohi-mandal-1

Aarohi is the 5-year-old daughter of a farmer couple from a small village in Bengal and she is suffering from Blood Cancer. She too needs to undergo a Bone Marrow Transplant soon to survive.

Note: For donors seeking refunds to donations made via bank transfer or UPI to the account number and UPI ID mentioned on the campaign page, we would request you to share the account details with us by replying to this email or reaching out to us on feedback@milaap.org.

Thank you all once again for the support.

Regards,
Team Milaap
24th April 2019
Dear Supporters,

Thank you for your support.

Vishvawaraj has a phenotype of Wolman’s disease. He was diagnosed as Wolman’s disease based on low acid lipase levels and hence was referred for transplant. However, genetic tests did not confirm the diagnosis of Wolman’s disease. I have therefore referred him to the gastroenterology referral team to reinvestiage him as the diagnosis is not clear.

Please keep supporting him.

Regards,
Dr. Prashant Hiwarkar
Dear Supporters,

Thank you for your support.

Vishvawaraj has a phenotype of Wolman’s disease. He was diagnosed as Wolman’s disease based on low acid lipase levels and hence was referred for transplant. However, genetic tests did not confirm the diagnosis of Wolman’s disease. I have therefore referred him to the gastroenterology referral team to reinvestiage him as the diagnosis is not clear.

Please keep supporting him.

Regards,
Dr. Prashant Hiwarkar
Content Disclaimer: The facts and opinions, expressed in this fundraiser page are those of the campaign organiser or users, and not Milaap.
Rs.1,750 raised

Goal: Rs.2,250,000

Beneficiary: Vishvaraj Dighe info_outline

Supporters (1)

A
Anonymous donated $25

May god bless the child and the family.