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Help My 1-Year-Old Daughter Fight Critical Mid-Gut Disorder

I am Ravikumar from Hyderabad. I am writing to you to seek your help for my 1 year old daughter. She has been fighting a battle with medical abnormalities since she was 5 months old. She suffers from a rare disorder of Malrotation with Mid-gut Volvulus with Adhesive Intestinal Obstruction. My baby girl has undergone 4 major surgeries without much success. 

She was discharged from the hospital in the month of November 2016 with home TPN. She was treated at home for month and half then she fell in sick. Currently, she is being treated by the Doctors of Rainbow Children’s Hospital at Banjara Hills, Hyderabad. 

She is currently on a ventilator. But Doctors are very hopeful about her recovery with aggressive course of treatment. However the treatment requires at least 15-20 lakhs for surgeries, tests, TPN (Total Parental Nutrition) and hospital expenses. I have already spent Rs. 20 lakhs and have exhausted all my loan options. I struggling to keep up with piling bills. Here I am, requesting you all to help me save my little daughter. 

With lots of hope, 
Lakshmi Maanvi's medical summary report
Lakshmi Maanvi's medical summary report
Out of Ventilator and shifted to ward
Out of Ventilator and shifted to ward
Helping her to gain weight and body mass with the TPN
Helping her to gain weight and body mass with the TPN
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13th December 2017
Dear Friends,

Without your support I am sure we would be in a different situation now. My little angle turns 2 years on Dec-15th and still she looks like a 6 months old baby. Due to the number of surgeries (5 surgeries) her growth and development is far behind than the actual age. Despite giving high nutrition DHA formula milk her Intestines are not developed well and intake absorption is not adequate.

Until her intestines develop she cannot go for further surgery to close the stoma (Ileostomy). Recently Doctors have examined her and change another DHA formula milk (Ketocal 4:1) which is more expensive than Neocate which we are currently using. And another side they are worried about her growth and development and Neuro activity, which is not at her actual age. Hence suggested doing few Genetic and Neuro Examination tests to assess her Growth and Development. These tests are expensive and we have to get those done at some point in time.

Yes, now we are seeing a real warrior at home, she is fighting hard to live and we are not losing any hopes. Hopefully, God will listen to our prayers and helps her to come out of this painful and tragic situation.

Thanks again for your support. Please do pray for her health and speedy recovery. 

Ravi. V

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Beneficiary: Ravikumar V info_outline