After two years of my marriage with Pankaj, the arrival of Taksh completed our family. We live in Delhi. I worked in a small institution as an education counsellor before my pregnancy. Pankaj has recently started his own business and a lot of investment has gone for into the business.
What looked like jaundice was much worse than we thoughtMy baby was born fine and I was discharged a day after his birth. In March, before taking Taksh for his usual vaccination, we observed a little yellowness of his eyes. We went to the doctors and asked for tests for jaundice.
The tests reports didn’t show any visible problem. But the yellowness of the eyes kept increasing, also his stool was becoming white. We knew something was wrong with our baby. Pankaj and I couldn’t afford to take a risk with his life. We insisted on an ultrasound and our worst fears were confirmed.
Taksh’s liver was swollen. We immediately moved to a better hospital where better treatment was available. We were asked to do the tests again and the results were shocking. Our little baby had biliary atresia, a liver condition where bile ducts are narrowed or missing.
In his case, there were no bile ducts and his liver is 85% damaged. He was just born a few days back. I couldn’t understand how the liver of such a young baby be damaged. I failed to get any answers.
Our little one is dying every day of painSoon, our little baby was put through much pain in the name of treatment. Countless needles pierced his little body every day. At an age where my baby is just supposed to drink nothing but milk, he has to gulp 7-8 syrups every day. My heart bursts to see him cry so much. Sometimes after feeding him, he vomits and is unable to eat for a long time.
Recently he was operated upon. The doctors took a part of his intestine to create a temporary bile duct in his body. But the doctors are saying that only a liver transplant is the answer because so much of his liver is completely damaged.
It’s painful for us to look at him. Who is to blame for a newborn's health but us - his ignorant parents? The surgery has already caused him a lot of pain. He also suffers from bouts of sleeplessness. His pain keeps us awake at night - where we helplessly watch him cope.
Not one plan we made before his birth is matters any moreWhen I was pregnant with Taksh, Prakash and I used to plan - which shop should we go to buy clothes and toys for our baby. I used to tell my husband and my parents-in-law that how amazing it feels when the baby is moving within. But now, all we have to do is plan to arrange funds to save our baby.
I had planned to go back to work once he could take bottled milk to save for his future. But now, my little baby suffers so much that I am scared to keep him away from my sight.
Prakash and I became parents very recently. We were not prepared for so much pain for our baby. We are scared every second. We didn’t even get time to enjoy parenthood and we have already been forced to grieve. We can’t let our baby die.
I am scared of surgeries. I fear getting one to give my baby a part of my own liver - but I am even more scared it will be of no use. It is our very last hope. I pray it is not snatched away from us. It is painful to repeat Taksh's condition to well-wishers. We are tired and scared.
In the past 2 months, we have already spent Rs 3.5 lakhs. All our savings are gone. We don’t have many relatives who can help us. We are just running from one hope to another trying to arrange a surgery.
How can you help?The injections and medicines have kept death at bay till now. He is getting worse every second. We are desperate to save him. But the cost required for the liver transplant is Rs 19 lakh. It is such a big amount and I have no way to arrange for it.
Your support can save Taksh.