I was diagnosed with Brainstem Glioma (Cancer) in 2016, when I had started my career at the age of 27. This diagnosis turned my whole world upside down. But following 29 sessions of radiation treatment for the brain tumour, and five years of oral chemotherapy with Temozolomide, I was able to lead a relatively normal life.
Vaseem at Delhi in 2019
Unfortunately, things took a turn for the worse last year - when my mobility and speech got affected, I realised cancer has come back. While undergoing my regular MRI scans, I learnt that the tumour has been growing and needs more attention with rigorous medications. In the past 8 months I have experienced extreme symptoms like loss of balance and loss of sensation on the right side of my face. I underwent a PET Scan, MRIs, and a second radiation treatment of 28 sessions. However, my symptoms kept getting worse after the second radiation session.
First Cycle of Chemotherapy: 2,40,000
Second Cycle of Chemotherapy (including recent increase in cost of Bevacizumab due to Covid19): 3,50,000
Other Medications & Scans : 1,00,000
Occupational, Speech Therapy, Mobility Equipments and Mental Health Care Sessions: 3,00,000
Palliative Care and Others Expenses: 3,00,000
1. The price of the second chemo cycle is higher due to increase in medicine cost due to COVID-19
2. Due to loss of mobility and speech, I would require continuous occupational and speech therapy for more than a year to get back to leading a regular life. Besides this, me and my family as caregivers have gone through a lot of trauma and I would like to take care of them by providing them therapy sessions.
3. As doctors are suggesting that palliative care could do magic, me and my family would need support for palliative care.