Please help Trishika fight against a rare genetic disease | Milaap
Please help Trishika fight against a rare genetic disease
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    from Kochi, Kerala


When our baby girl was born, I considered myself extremely fortunate to live a beautiful life of motherhood. However, only a month after her birth I realised that my life isn't that beautiful and Im going through a worst phase, my baby being critically ill.
      I am Sreelakshmi Sharath. Our 4 months old baby girl, Trishika is currently admitted in Amrita Hospital, Kerala. She is on ventilator since past 3 months due to poor respiratory efforts and also has swallowing difficulties due to muscle weakness. She is diagnosed with a rare disease called Reversible COX deficiency Myopathy. It is a rare genetic disorder with relatively excellent prognosis for neurological recovery after an initial life of respiratory crisis requiring long term ventilation. Reports say that this disease onsets in early infancy,  severe in the early stage, but recovers spontaneously by early childhood between 4 to 20 months of age with intensive care and ventilator support.  As per medical experts, the child would require prolonged ventilator and ICU care for an indefinite period of time, probably for atleast another 6 to 12 months. The recovery would happen spontaneously just by providing supportive care and ventilation. 
       Currently the baby is fine, alert and active except the need for ventilator. The baby being hospitalized since 3 months, we have exhausted all our savings and huge loans for medical expenses so far. The daily accumulating ICU plus ventilator charges along with medicines (which is about Rs.10,000 per day) and the need for prolonged ICU stay is making us freaked out and hopeless as its beyond our financial capability. We are in need of helping hands to continue the medical care for her until she recovers from this deadly disease. We would require an estimated amount of Rs. 36,00,000 to continue her ICU care for next one year. We do not want to let go our little angel just because we are financially incapable. 
     We plead before the world to support us with your prayers and valuable donations to save our child from this crisis. She is a gem of our life and her life is priceless, we just cannot afford to lose her. The poor child is already tolerating unbearable pains and discomforts of needles and countless tubes at this very tender age which cannot be even imagined by us. We seek your mercy to save our little angel Trishika!!! Please help us!!!

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