Help Guna Rajya Laxmi to fight Neurological Disease

I am Guna Rajya Laxmi from Hyderabad, India. I want your help to fight my fatal genetic neurological disease called Friedreich’s ataxia (FA). This is a  debilitating, life-shortening, degenerative neuro-muscular disorder. I first noticed sympoms at age 23 and was diagnosed with FA at age 25 and I am now 35 years old.  I noticed  changes in my walking like difficulty with my balance and climbing stairs so I visited a neurologist. After many diagnostic tests I am diagnosed with Friedreich Ataxia which is a genetic Neuro Muscular disease affecting central nervous system. Due to this disease I am unable to walk and confined to wheel chair and home for the past two year. This debilitating disease makes me extremely weak and dependent on others for daily living activities such as toilet. My hearing,  vision and speech are impared at this time and I cannot hear property and I have double vision and my speech is slurred. FA is a progressive disorder very soon I will be fully disabled and will have to be dependent of a full time helper. When I was normal  I completed BSC Nursing and was employed, I come from a very poor family, my mom is a homemaker and my father is a painter the money my family makes is not enough to support my condition and medical expenses. Because FA is genetic all my siblings are also impacted my FA, we already lost one brother and my sister who is 25 also has FA. It is very rare that all the siblings in the same family are impacted by a deadly non curable disease. 

FA in India is basically a death sentence, I am confined to my house and cannot go anywhere and use full-time wheelchair to move around in the house.   It is estimated that 1 in 1000 people are carriers of defective FA Gene like my mother and father, and carriers do not exhibit symptoms of FA.  Each such carrier parent has one mutated gene (allele) and one normal gene (allele) in the FXN gene.  Because each child gets one of the mother’s genes and one of the father’s genes in this location, there are four possible combinations of the genes passed down to the child or a 25% chance that the child will have FA.

Friedreich’s ataxia (FA) can cause following health problems:

  • Loss of coordination (ataxia) in the arms and legs(unable to walk)
  • Fatigue - energy deprivation and muscle loss
  • Vision loss
  • Hearing loss
  • Slurred speech
  • aggressive scoliosis (curvature of the spine)
  • Type 1 diabetes
  • serious heart conditions, including  hypertrophic cardiomyopathy and arrthymias
  • Depression
  • Curvature of the feet
The house I am living is not good to go for hospital visits. So I want to move to the assisted nursing homes to live there.T o join there I want financial support.
Doctors suggested me to take physiotherapy and attend experimental drug trials in India or other countries. I have to buy equipment such as wheelchair, walker and modify my bathroom so I can attend to daily living activities such as shower and toilet. Some advanced medical treatment options are available only foreign countries via clinical trials for that I need your support. I am requesting your HELP to pay for my treatment and buy necessary medical equipment. The money I collect will be used for my medical treatment and buy disability equipment only.
Diagnostic test protocol
Diagnostic test protocol
Medical treatment bill
Medical treatment bill
Ask for an update
10th April 2018
Dear Supporters,

Thank you so much for your kind support towards my fundraising campaign. I would like to express my gratitude towards your kind decision of helping me with my treatment and physiotherapy. Your kindness not only helps me but also is an inspiration to the others in motivating them to help the needy.

I am withdrawing the funds raised to meet my expenses for my treatment purpose.

Thanking You. Will keep you posted. 
Content Disclaimer: The facts and opinions, expressed in this fundraiser page are those of the campaign organiser or users, and not Milaap.
Rs.9,000
raised of Rs.275,000 goal

3 Supporters

Beneficiary: T. Guna Rajya L... info_outline

Supporters (3)

A
Anonymous donated Rs.1,700
3 months ago
R
Rishipal donated Rs.1,000
4 months ago
NI
Natache donated US $100
4 months ago

Very proud of you! Can count on me.