My son is only 6 months old and suffering from a rare genetic disease MPS-VII (Mucopolysaccharidosis type VII). Treatment for this disease is not available in India but is available in the USA. The total cost of this treatment is Rs 2 crore. In this disease scenario, only the head and liver grows larger in size and he can not hear, see and doesn't respond like a normal baby.
This is a very critical situation to see him and could not help to recover from this disease due to our financial status and treatment fund of Rs 2 crore. It's a tough situation to see my child in this situation.
Every day I pray that no one ever goes through such disease. It is extremely difficult for any parent to see their child battling between life and death and not being able to see, hear and not a regular movement like a smile. Ever since the baby is born, me and my wife, have been living in the constant fear of losing him and growing like that way.
Your possible contributions and sharing this link among your circles can help save my Son's life