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Help my son Suffering From Abnormal Head & Liver Enlargement.

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Updates (5)

My son is only 6 months old and suffering from a rare genetic disease MPS-VII (Mucopolysaccharidosis type VII). Treatment for this disease is not available in India but is available in the USA. The total cost of this treatment is Rs 2 crore. In this disease scenario, only the head and liver grows larger in size and he can not hear, see and doesn't respond like a normal baby.

This is a very critical situation to see him and could not help to recover from this disease due to our financial status and treatment fund of Rs 2 crore. It's a tough situation to see my child in this situation.

Every day I pray that no one ever goes through such disease. It is extremely difficult for any parent to see their child battling between life and death and not being able to see, hear and not a regular movement like a smile. Ever since the baby is born, me and my wife, have been living in the constant fear of losing him and growing like that way.

Your possible contributions and sharing this link among your circles can help save my Son's life

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20th November 2019

Dear Supporters,

We have very unfortunate news to share with you all.

It's with deep sadness that I inform you that in spite of all our efforts and prayers, Saksham passed away due to heart failure.

His heart and liver were swollen. Also, he had pneumonia. He put up a great fight from past 11 months till his last moment.

We extend our sincere thanks to all of you who helped and prayed for him.

Thank you so much for all your love and support.

Regards,
Thejbhan(Father)

7th October 2019

Dear Supports,

Thank you for your immense support and prayers,
The doctor has arranged the medicines from USA and it is costing me an approximate of 31 lacs and I'll be withdrawing the funds to purchase the medicines, I'll be posting another update soon along with the receipt and Saksham's progress.

Please continue to support us and keep him in your prayers.

Thank you,
Regards
Thejbhan
(Father)

20th September 2019

Dear All,
Thanks for your support
My doctor has sent email to USA for arranging medicine for my son.

thanks
tejbhan

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