My child Sajeevn Raj (14 Months old) is suffering from a Genetic disease called GAUCHER DISEASE. Which caused his internal organs like the spleen, liver and other organs to not function properly, swollen and it’s started deteriorating. We had admitted him in JIPMER hospital in Puducherry , where he was diagnosed with this disease and they have told us that it’s a very rare genetic disease and only a few hospitals in India have these treatment options like Enzyme replacement therapy and Bone marrow transplant which is the only options available for him in order to survive, which cost a lot of money from 40 lacks to 1Crores Rupees. We are from a poor background family, where I work in a shop with 7k as my salary. I beg everyone and anyone for any type of help in order to save my child. We will be very grateful in getting any help from anyone I order to save him.
I have attached the details of his disease, results and his condition. It would be invaluable for us if we had any type of help; I have attached the Account details where you can help use financially and my number where you can contact me directly to provide any other means of help.
Parents Detail and Address