A. surender and R. suganya , 6months old son S. jebin josh has been diagnosed with Spinal Muscular Atrophy (SMA) type 1- a rare disease that affects almost 1 in 10,000 babies worldwide. This disease progresses SMA symptoms are present at birth or by the age of 6 months rapidly and in most cases the child becomes very week .
The most effective treatment of SMA is Zolgensma. S. jebin josh needs Zolgensma, a one-time gene replacement therapy, and it needs to be imported. Called the world's costliest drug, it costs 16 crore rupees and is more expensive than any family can afford alone.
The only way her parents can put together such a huge amount is with your help. She needs your love and support you can help her too. Please donate whatever you can!
Please share, support & contribute as much as possible. Nothing is small or big. Every penny counts. Thank you all in advance.
The most effective treatment of SMA is Zolgensma. S. jebin josh needs Zolgensma, a one-time gene replacement therapy, and it needs to be imported. Called the world's costliest drug, it costs 16 crore rupees and is more expensive than any family can afford alone.
The only way her parents can put together such a huge amount is with your help. She needs your love and support you can help her too. Please donate whatever you can!
Please share, support & contribute as much as possible. Nothing is small or big. Every penny counts. Thank you all in advance.