Help Me Fight Als Motor Neuron Disease | Milaap
Help Me Fight Als Motor Neuron Disease
22%
Raised
Rs.2,28,098
of Rs.10,45,000
74 supporters
  • R

    Created by

    Ravindranath
  • R

    This fundraiser will benefit

    Ravindranath

    from Hyderabad, Telangana

80G tax benefits for INR donations

Hello Namaste, I am K Ravindranath and my friends and ex-colleagues call me Ravi. Everything is tough in my life because of being a middle-class guy. While in college, I used to do three different part-time jobs to support my fees and buy books.

In 2003, I started working as a Junior Officer in ICICI Bank and soon grew to the position of a Branch Manager in a very short time, through my hard work.
Then tragedy struck me in 2007 and I was diagnosed with ALS which is also called Motor Neuron Disease. By then I was married to my sweet wife Lavanya and we were blessed with a beautiful baby girl Sahasra.

ALS or Amyotrophic Lateral Sclerosis is a terrible terminal illness that starts to weaken the body parts one after another and in a year or two, people like me become totally immobile and paralyzed.  It’s like your soul is caged in the skeleton. Doctors gave me a couple of years to be alive but it has been 15+ years and I am still living, just with willpower and a positive attitude towards most things.

I had huge breathing problems in October 2012 due to Aspiration Pneumonia and was hospitalized. I was given 48 hours but I survived, then doctors suggested I should get a tracheostomy which is a hole made in the throat for long-term invasive ventilation. Since then, I am living on a ventilator with loving support and care from my family. I save huge hospital bills, as I’m taken care of at Home ICU setup. My wife has all knowledge of this disease and has successfully saved me in several emergency situations.
It’s been almost ten years, we need a new ventilator because the present one may fail anytime due to its age. I have exhausted all my savings. Also in India, Home Care and Medical Devices are not covered under any insurance. I don’t have a nurse to look after me, because I can’t afford one. My wife and my mother take care of me and my teenage daughter helps them. My sister and my brother-in-law are giving us lots of moral support and financial help. We couldn’t get this far without their support.
My daughter is a brilliant girl, and we are struggling hard to give her a good education as education has become very costly.  I need help with her higher studies.
There are many proposed treatments and clinical trials for ALS in the final stages of research and I have to be alive by the time they come. Most doctors suggested that I should get physiotherapy to save the little body movements I have, so I need help to pay for a physiotherapist. It might cost around 25-30 thousand per month for that.
I never gave up on the desire to live and be happy with my family. My family is my inspiration!

I use a laptop with the Windows Eye Control option to type with my eyes and am connected to the world through Facebook and WhatsApp mainly. I’m attaching my videos and photographs, where you can see me writing on my laptop through my eyes.
I request the readers to support my cause, which is buying a new Ventilator, providing a good education for my daughter, and funds for medicines and physiotherapy.

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