Help Mohit Khare Recover From Congenital Muscle Myopathy | Milaap
Help Mohit Khare Recover From Congenital Muscle Myopathy
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Need Rs.1,100,000
  • Pragya

    Created by

    Pragya Social Organization
  • PS

    This fundraiser will benefit

    Pragya Social Organization

    from Bhopal, Madhya Pradesh

80G tax benefits for INR donations

I am Mohit Khare from Bhopal and i am 37 year old. I am suffering from Congenital Muscle Myopathy by birth. It is a Neurological disease. A myopathy is a disorder of the muscles that usually results in weakness. Congenital myopathy refers to a group of muscle disorders that appear at birth or in infancy. I have very low muscle power so i am unable to stand, walk and to do normal physical works. 

I can do only my daily routine work by myself and my brain is working properly. I had a sister and she was also suffering with same disease by birth. She has passed away in May 2014 due to respiratory failure in the age of 30, because there are no known cures and treatment for any of this disease in India.

I had a thought to do some help for development and help of physically handicapped people, so after graduation in computers i have taken initiation with my friends towards social development work with Pragya Social Organization with watchword – “Aaroh Tamso Jyoti”.  I have started my service to my organization which is working especially with physically handicapped people and women.

Medical cure of this disease is not available in India  so need go to abroad for further medical treatment. treatment  of this disease  Available in :

1- Mayo clinic - Rochester in US
2-  NINDS( National Institute of Neurological Disorder and Stroke) Bethesda U.S.

    Expected budget of treatment is approximate 21,00,000 in which Able to arrange 50% amount and need 50% from crowdfunding.

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