Twins Struggle To Save Mother From A Rare Condition | Milaap

Twins Struggle To Save Mother From A Rare Condition

Hers are the most magical hands. Warm, caring and healing everything they touch. But now those hands have become cold - rigid, swollen and devoid of any sensation or movement.


Ours is the perfect family - a dream come true. My mom always wanted a boy, and my dad wanted a girl. Both their wishes were granted when my brother and I were born as twins.


Late February 2019, my mom complained of giddiness and imbalance. On 1st March 2019, an MRI brain scan done at Ruby Hall Clinic, Pune (Wanowrie branch) revealed that mom had 4 strokes in different parts of her brain. She was severely disoriented, confused and hallucinating. Subsequently, we took her to Nobel Hospital where she was admitted to the ICU the very same day.


But the worst was yet to come..

5 days after being in the ICU at Noble Hospital, her condition worsened. She was diagnosed with encephalitis (brain inflammation) caused by a viral infection. The virus that caused the encephalitis is very rare (1 in 500,000). Without treatment, 70% of the cases result in death.


On 31st March 2019, my brother and I spent our birthday in the ICU at Noble hospital, trying to wake mom up. On 18th April, after 50 days in the ICU at Noble hospital, we decided to shift our mom to the ICU at Ruby Hall Clinic (Sasoon Road branch).

As of 5th May 2019, my mom has been in the ICU for 66 days. It's been a tough journey for us and our mother battling it out in the ICU. My mom has been on ventilator support since 11th March. She has no hand or leg movements and is fast asleep most of the times. She gets multiple seizures throughout the day and it is extremely painful to see her suffer so much. Despite all the challenges thrown at her, my mom is still alive, breathing and fighting to live. She has recently started showing small signs of progress in the form of opening her eyes and maintaining eye contact with anyone who walks in to see her. She is also looking at different objects when we point our hands towards them.

The last MRI that was done on 8th April shows that there is moderate reduction in the inflammation in the brain.


These are the first small positive signs towards recovery, and I am determined to do everything I can to get mom back home. It doesn't look like mom is giving up and I am not going to give up on her either.  The first major milestone is trying to remove mom's dependency on the ventilator for breathing. Once my mom can breathe without the ventilator, the rest of the treatment and neurological rehabilitation can be done in a hospital ward.

As per the Neurologist on my mom's case , there is still hope and my mom will be able to walk out of the hospital once she recovers; however, this is going to be a long journey and it is difficult to say how much more time my mom will have to be in the ICU. I have been told that we need to be patient and take things one day at a time.

I have already spent close to INR 25 Lakh (including medicines) on my mom's treatment. The average cost per day as of today is anywhere between INR 40,000 - 60,000. We as a family have managed to pay the bills so far with the help of our life savings, a medical insurance and two medical loans. We are now very close to exhausting all the sources for financing our mom's treatment.





This is why I have turned to external sources of funding through donations. I need your help and support in this difficult time in my life so that I can continue my mom's treatment without bringing it to a halt abruptly. As of now, I want to raise an amount that we feel will be sufficient to continue her treatment both in and out of the hospital. In addition to the donations, please also pray for my mom. This will give her strength to fight the disease and be victorious. 

I thank you for your time and look forward to your support in helping me bring my mom back home.
Ruby Hall Clinic - Admission Letter
Ruby Hall Clinic - Admission Letter
Noble Hospital - Medical Certificate
Noble Hospital - Medical Certificate
Ask for an update
3rd June 2019
Hello Well-Wishers, Contributors and Donors,

We want to thank you once again for your unconditional support in helping us bring mom back home. Here is a short update on how your contributions and prayers have helped mom's recovery :

  1. Mom only has 1% dependency on the ventilator and she is able to breathe on her 99% of the day by herself.
  2. The ventilator dependency is expected to be eliminated by the end of this week. This will be a huge milestone in mom's recovery as this will bring her very close to being discharged from the ICU.
  3. Once the ventilator dependency is eliminated, the next big step would be to eliminate the tracheostomy. With the tracheostomy eliminated, mom should be able to eat food and will no longer need to be in the ICU. This process is expected to take 2 weeks from the time the ventilator is removed.
  4. Once mom is out of the ICU, the focus will be on mobilizing her through aggressive physiotherapy.

There is still a lot of time before mom can come home but we are slowly getting there. For this reason, we have decided to extend the campaign for one more month so that we can reach our goal amount and continue mom's treatment.

We have all come a long way in mom's journey but the fight is not yet over. With your contributions, we have been able to clear 90% of our outstanding bills at the hospital.

We thank all of you from the bottom of our heart. Without your support, we would not have been able to continue mom's treatment and would have to end it abruptly. We request you to continue sharing this campaign with your friends and family so that we can reach our goal amount.

Thank you,
Chetana Kinger
Hello Well-Wishers, Contributors and Donors,

We want to thank you once again for your unconditional support in helping us bring mom back home. Here is a short update on how your contributions and prayers have helped mom's recovery :

  1. Mom only has 1% dependency on the ventilator and she is able to breathe on her 99% of the day by herself.
  2. The ventilator dependency is expected to be eliminated by the end of this week. This will be a huge milestone in mom's recovery as this will bring her very close to being discharged from the ICU.
  3. Once the ventilator dependency is eliminated, the next big step would be to eliminate the tracheostomy. With the tracheostomy eliminated, mom should be able to eat food and will no longer need to be in the ICU. This process is expected to take 2 weeks from the time the ventilator is removed.
  4. Once mom is out of the ICU, the focus will be on mobilizing her through aggressive physiotherapy.

There is still a lot of time before mom can come home but we are slowly getting there. For this reason, we have decided to extend the campaign for one more month so that we can reach our goal amount and continue mom's treatment.

We have all come a long way in mom's journey but the fight is not yet over. With your contributions, we have been able to clear 90% of our outstanding bills at the hospital.

We thank all of you from the bottom of our heart. Without your support, we would not have been able to continue mom's treatment and would have to end it abruptly. We request you to continue sharing this campaign with your friends and family so that we can reach our goal amount.

Thank you,
Chetana Kinger
15th May 2019
Hello Well-Wishers, Contributors and Donors.

With your generous contributions we have been able to reach the 6 Lakh mark. We are thankful for every little contribution. Please do continue to share the campaign on all platforms and please help us reach our goal, faster!

As you already know, the per day ICU expenses are very high. Your contributions help us get through each day and help in mom's treatment and recovery, one day at a time. We are extremely grateful for the immense support that we have been receiving.

We will be initiating another withdrawal request today (as per whatever amount the campaign currently permits). We have  received a new deposit slip of 4,50,000 Rs, which we need start clearing as soon as possible after clearing the previous pending deposit amount. Apart from this, we will be using the withdrawal amount to pay for the ICU expenses and medicines.

The doctors have now started to wean-off mom from the ventilator. Everyday, starting today, doctors will put mom off the ventilator support, for two hours, each day. This is a huge step in mom's journey towards recovery. The number of hours off ventilation will gradually be increased, as per mom's tolerance, till she can eventually, completely, breathe on her own.

The sooner mom's ventilator dependence is eliminated, the faster she can be out of the ICU and moved to the wards. We really hope mom powers through all her weaning-off attempts. We will keep all of you updated with mom's progress.

Please keep sharing and supporting. A simple act of sharing will help us raise funds faster towards my mother's treatment.

Thank you!
Hello Well-Wishers, Contributors and Donors.

With your generous contributions we have been able to reach the 6 Lakh mark. We are thankful for every little contribution. Please do continue to share the campaign on all platforms and please help us reach our goal, faster!

As you already know, the per day ICU expenses are very high. Your contributions help us get through each day and help in mom's treatment and recovery, one day at a time. We are extremely grateful for the immense support that we have been receiving.

We will be initiating another withdrawal request today (as per whatever amount the campaign currently permits). We have  received a new deposit slip of 4,50,000 Rs, which we need start clearing as soon as possible after clearing the previous pending deposit amount. Apart from this, we will be using the withdrawal amount to pay for the ICU expenses and medicines.

The doctors have now started to wean-off mom from the ventilator. Everyday, starting today, doctors will put mom off the ventilator support, for two hours, each day. This is a huge step in mom's journey towards recovery. The number of hours off ventilation will gradually be increased, as per mom's tolerance, till she can eventually, completely, breathe on her own.

The sooner mom's ventilator dependence is eliminated, the faster she can be out of the ICU and moved to the wards. We really hope mom powers through all her weaning-off attempts. We will keep all of you updated with mom's progress.

Please keep sharing and supporting. A simple act of sharing will help us raise funds faster towards my mother's treatment.

Thank you!
7th May 2019
Hello Donors, Well-Wishers and Contributors,

Thank you so much for the support and prayers. I am overwhelmed and extremely grateful for your support. Please continue to share this campaign link with your closed friends and relatives, on WhatsApp, on one to one basis. 

I thank you from the bottom of my heart for such prompt donations. These contributions will help my mom to continue treatment and get closer to recovering, each day.

As of 7th May 2019, we have an outstanding amount of Rupees 5,30,000 to be paid to the hospital. This amount is inclusive of daily ICU charges and medicines. I am currently withdrawing whatever amount I can to clear a part of this outstanding hospital amount. I will be initiating another fund withdrawal request - when we begin to get more funds - in order to clear the full amount of 5,30,000 plus further expenses thereafterWe will be taking each day as it comes, and your contributions will help us get through each day.

My mom is still battling it in the ICU. But she is beginning to get more alert and attentive and has started responding to pain, with minute facial expressions. I hope she continues to have these small victories and I will keep posting updates regarding her progress.

Thank you once again. I would request you to keep supporting and praying. Will keep you posted.

Thank you!
Hello Donors, Well-Wishers and Contributors,

Thank you so much for the support and prayers. I am overwhelmed and extremely grateful for your support. Please continue to share this campaign link with your closed friends and relatives, on WhatsApp, on one to one basis. 

I thank you from the bottom of my heart for such prompt donations. These contributions will help my mom to continue treatment and get closer to recovering, each day.

As of 7th May 2019, we have an outstanding amount of Rupees 5,30,000 to be paid to the hospital. This amount is inclusive of daily ICU charges and medicines. I am currently withdrawing whatever amount I can to clear a part of this outstanding hospital amount. I will be initiating another fund withdrawal request - when we begin to get more funds - in order to clear the full amount of 5,30,000 plus further expenses thereafterWe will be taking each day as it comes, and your contributions will help us get through each day.

My mom is still battling it in the ICU. But she is beginning to get more alert and attentive and has started responding to pain, with minute facial expressions. I hope she continues to have these small victories and I will keep posting updates regarding her progress.

Thank you once again. I would request you to keep supporting and praying. Will keep you posted.

Thank you!
Content Disclaimer: The facts and opinions, expressed in this fundraiser page are those of the campaign organiser or users, and not Milaap.
Rs.653,900 raised

Goal: Rs.2,000,000

Beneficiary: Pooja Kinger info_outline

Supporters (87)

A
Anonymous donated Rs.1,000
NG
Neha donated Rs.3,500
A
Anonymous donated Rs.500
SV
SHRIKANT VYANKATRAO KUMTHEKAR donated Rs.500
A
Anonymous donated Rs.500

Take care God bless

P
Priyanka donated $150