Myelomeningocele is a severe type of spina bifida in which the membranes and the spinal nerves protrude at birth, forming a sac on the baby's back. The exposed nervous system may become infected, so prompt surgery is needed after birth.
Myelomeningocele can happen anywhere along the spinal cord. It is most common in the lower back (lumbar and sacral areas). There is nerve damage below the level of the myelomeningocele. As a result of the nerve damage, babies may have symptoms. Babies with myelomeningoceles lower in the spine have less severe symptoms. Babies with higher myelomeningoceles have more severe symptoms.
Mushkan's family has seen her suffer since she was born, which torments her during her sleep, causing intense pain and discomfort. Some days, her mother helps her out while her father keeps procuring funds to provide his child the relevant medical treatment so that she doesn't lose her childhood with every passing second and lead a normal life.
Mushkan's father, Bijay, has two children, both girls, from his first marriage. After his first wife's death, he married Sita to take care of the family so that the girls do not feel the absence of their mother. Sita struggled through her life and had a miscarriage during her first pregnancy. Then, fortunately, after four years, she gave birth to Mushkan, but her condition left them in a state of shock.
Due to negligence by doctors, as they failed to detect the baby's condition in the womb itself, Sita gave birth to a deformed child with a tumor on her back and an enlarged head. Following this, the concerned doctors surgically removed the tumor, but the child was left with a large wound on her back, making her condition even worse.
Desperate to get their child treated, Sita and Bijay went to Ranchi to get her the medication she needed. However, the doctors advised them to come back later and they felt helpless due to the complications, directing them back to square one.
However, they did not lose hope and went everywhere in the state to get their child treated as she was suffering each second. Despite Mushkan's serious ailments, doctors denied any further treatment, throwing their life out of gear. Sita even sold her jewelleries and placed all the funds on the line, but received nothing but dissatisfaction.
Moreover, Sita works as a maid and Bijay as a labourer to provide for their family. They barely earn over Rs. 7,000 (USD 92.27) in any month and have huge bills with no way to repay them as they often stumble upon Mushkan's medical expenses.
Burdened with their financial issues and disappointment, the family is on the verge of losing hope and has used almost all their funds, leaving them with nothing. They have left everything to fate and await a good samaritan that would help them in helping their child. They express their inability to keep everyone in the family fed, let alone pay Mushkan's medical bills. With the family's falling income, they seek financial aid from society, urging people to support Mushkan during these challenging times.