Rare Brain Disorder Has Left Six-month-old Writhing In Pain | Milaap
Rare Brain Disorder Has Left Six-month-old Writhing In Pain
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Need Rs.11,00,000
  • Project Global Cure

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    Project Global Cure
  • J

    This fundraiser will benefit

    Janvi

    from Bijnor, Uttar Pradesh

80G tax benefits for INR donations

Story


A few months back, Ayodhya Prasad and Radha were beaming with joy after the birth of their little angel. However, the happiness did not last long, and now they are staring at a reality where a child's life is at stake.

06-month-old Janvi is suffering from Hydrocephalus with Pleomorphic Xanthoastrocytoma. Hydrocephalus is a severe condition in which fluid accumulates in the brain, enlarging the head and sometimes causing brain damage. Pleomorphic xanthoastrocytoma (PXA) is a rare, benign brain tumour that likely arises from astrocytes, cells in the nervous system that make up the supportive network for the brain.


Janvi was born with a cyst in the centre of both eyes. It was hardly noticeable at the time of birth, but it grew more prominent over time. Today it has grown equal to the size of a small ball, shifting the alignment of her eyes. It swells up as she breathes. There is a continuous flow of pus and blood from her eyes.

Her condition resulted in Hydrocephalus, another severe brain disorder. She experiences constant headaches, nausea, projectile vomiting, dizziness, weakness of limbs, visual dysfunction, and seizures. As a result, her brain development and overall growth have come to a halt. She urgently needs the placement of a shunt in the brain. This shunt makes an alternate pathway for CSF. This tube is narrow and flexible, allowing it to flow CSF into the different organs and re-absorbed.


"I suffered a huge loss at work as my child always needs me. I had to move to and fro from work to home. My mother is also not well, and I am liable for my young sister's wedding. Our child cries in pain all day. She cannot feed. But we hope she can live a long life with proper medical treatment. Please help us make this happen." Ayodhya Prasad, father.

Janvi's father works in a small hotel out of town and earns merely Rs 8000 per month, which is insufficient to fulfil his overlapping responsibilities. Her mother, Radha, is a housewife. She works tirelessly to look after her ailing daughter and old mother-in-law. 


Baby Janvi needs immediate medical treatment costing a large sum of money her parents do not have. As a result, they are requesting your support.

Janvi's parents are trying their best to save her from the grip of the deadly disease, but they fail because of a lack of resources. They struggle to sustain themselves on a meagre income; treatment costs are beyond their reach. Please come forward to support little Janvi's treatment and save her life.

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