Born with limb defect, boy requires $32,000 surgery to save his leg | Milaap
Born with limb defect, boy requires $32,000 surgery to save his leg
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  • AK

    Created by

    Anjani Kumar
  • HK

    This fundraiser will benefit

    Himanshu Kumar

    from Baliapur, Jharkhand

80G tax benefits for INR donations

Story

Parents of a two-year-old boy suffering from a limb deformity are seeking urgent funds for the treatment of their son.

Himanshu, who hails from Balipur in eastern India's Jharkhand, suffers from a right lower limb defect that makes it difficult for him to walk. While the left leg looks normal, the right one has swollen, affecting the boy's balance.

Manoj Kumar Mahato, Himanshu's father says that the boy was born with the defect.

"We have been to the doctors. One of them asked us to get an MRI done. We didn't have the money, so I took three days to arrange the sum, got the MRI done and took the reports to the doctors. When he saw it, the doctor said that my son would need to undergo an operation, otherwise he would not be able to wear shoes.

"Hearing this, I lost all confidence and courage. We don't have the money for the operation," Manoj said.

The 35-year-old man said that while it used to hurt him a lot, he has slowly gotten used to the pain of seeing his son suffer.

"I have adjusted a bit. I have left it all to fate. What can people like me do?" Manoj questioned.

Manoj, who works as a motorcycle mechanic, earns a palty Rs 3,000 (USD 38) every month.

"In some months, I earn Rs 4,000 (USD 51). But that is not enough. I have a family to run," he said.

Himanshu's mother Asha Devi said that the family also has to take care of their other son, his academics and other needs.

Recollecting his part, Manoj said that he borrowed some money from his friends a year ago for his son's treatment, but he is finding it difficult now, especially with his precarious financial condition.

"When the doctor asked me for the MRI, I thought it would cost around Rs 500 to Rs 1,000 (USD 6-USD 12.7). So we went there. But we had to come back when they said that the charge was Rs 6,500 (USD 83). That is why it took me three days to arrange the money," the father said.

Asha Devi recalled the several instances she had to endure insults from others due to her son's health condition.

"People would often say that it is due to my mistake. Even I think that we may have done some wrong in past life and God has punished our son. In that case, we should have been the one to deal with the punishment.

"I look at other kids playing and it breaks my heart," the mother said, sobbing.

"I wonder if one was enough. Why was the second one born like this? At times I wish he wasn't born at all," the anguished mother said.

Recalling the moment Himanshu's father saw him the first time, Asha Devi said, "He looked at our son and said it was all due to my mistake. I felt terrible. It doesn't hurt as much when someone outside the family says something like this... it came from him."

However, the father has become more empathetic towards Himanshu's condition and doesn't blame his better half for their son's peril. She said that she had thought about ending her life a few times, but refrained from it.

"When I looked at my sons, I thought what would happen to them? It does not matter how they look, I still love them the same," she said.

Speaking about the family's financial condition, the mother said they can barely afford a treatment of Rs 50,000 to Rs 60,000 (USD 639- USD 766), so anything costing more was a distant dream.

According to doctors, Himanshu is suffering from a grossly enlarged foot with malpositioning of the gait. He is also suffering from osteomyelitis of the talus bone. If not treated early, the leg may have to be amputated.

Himanshu will need to undergo bone and soft tissue reconstruction and through assessment of his lower limb- both radiologically and clinically.

Multistage surgeries and treatment will look to improve his limb. These include metatarsal osteotomies, repositioning of 2nd and 3rd rays by composite Y-V movement, serial casting for the ankle positioning and gait training.

The time span for the above would range between 6 and 12 months. He may need secondary corrective surgeries later and would need to follow up yearly for eight to ten years.

The overall treatment would cost him Rs 25 lakhs (USD 31,947).  

With treatment possible, the family deems that there is light at the end of the tunnel, but says that someone will have to come forward and help them, as they themselves aren't capable enough to get Himanshu the treatment.

"I would like to see my son healthy, so please help us," Asha Devi pleaded.

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