Help 7-year-old Fight Rare Disease | Milaap
Help 7-year-old Fight Rare Disease
1%
Raised
Rs.2,000
of Rs.15,00,000
2 supporters
  • M

    Created by

    Milaap
  • H

    This fundraiser will benefit

    Harshal

    from Pune

Story

My nephew master Harshal Mangesh Kadam (Age: 7 years) is suffering from Epidermolysis Bullosa skin disease. We did a lot of treatment in the initial years, but the disease was not diagnosed in 2-3 years. After some time, it was revealed that he is suffering from Distrophica epidermolysis Bullosa. The scale of  this disease in India is negligible and you will find only one patient in a few lakh people. The patients who are called “Butterfly Child” needed to be handled very carefully. This disease is found on a larger scale in other countries and many organizations and hospitals are working for such patients. Debra is one of those organizations. In India, this disease is treated only in Bangalore.

We found a ray of hope in the form of Manipal Hospital and they are ready to do the operation which is likely to cost around 15 to 20 lakh approximately. We are taking the steps in that direction, but the expenses are not affordable and hence we are trying to get help from some social organizations. Patient is my nephew and has been battling with the disease for last 7 years. The sick child is living a life of pain and suffering every day. At present, there is no other alternative except operation.

 Doctors have advised to do the surgery as soon as possible. We need your help and assistance to make our child live like a common person and bring his life back to normal. That is why I and my family are making emotional appeal for financial assistance to sensitive people like you who are committed towards fulfilling social responsibilities. I request you to please understand the seriousness of the disease and respond to our call.

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