Please Help Harinidurga To Recover From Spinal Muscular Atrophy Type 2 | Milaap
Please Help Harinidurga To Recover From Spinal Muscular Atrophy Type 2
of Rs.16,00,00,000
161 supporters
  • K

    Created by

    K Satyanarayanamurty
  • HD

    This fundraiser will benefit

    Harini Durga

    from Hyderabad, Telangana

My name is Satyanarayanamurty and I am raising funds for my 11-months-old daughter, Harinidurga who is suffering from Spinal Muscular Atrophy Type 2 and is undergoing not treatment due to a lack of funds. The treatment is costing us Rs.16 Crores and we need funds to continue the treatment and save her life. She has been diagnosed when she was 6-months-old.

We are unable to pay the required amount because we have already spent 10 lacs on the treatment. I request you to kindly contribute towards the treatment and help during our time of need. Each contribution is important! Please help us raise the required amount by clicking on the donate button sharing this fundraiser with family and friends.

We are grateful for your help and wishes!

SMA affects 1 in 10,000 babies and is the #1 genetic cause of infant death worldwide.

As of now, there are no treatment options available in India for this invisible killer. Our only hope for Harinidurga to have a normal life is to be able to import Zolgensma, a one-time gene replacement therapy, which in his current state could be a potential “cure”.

Zolgensma comes at a steep cost of INR 16 crores (USD $2.1 million).

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