Help Gaurav Raise Funds To Fight Spinal Muscular Atrophy | Milaap
Help Gaurav Raise Funds To Fight Spinal Muscular Atrophy
1%
Raised
Rs.100
of Rs.16,00,00,000
1 supporter
  • Shivam

    Created by

    Shivam kushwaha
  • GK

    This fundraiser will benefit

    Gaurav Kushwaha

    from Kanpur, Uttar Pradesh

Story

Baby Gaurav needs your help to fight SMA Type 1, a disease that usually kills babies before they are 2 years old. 16 crores (USD 2.1 million) is the cost of Zolgensma, the drug for the treatment. We want him to be with us on his first birthday.

We request everyone to come forward and help by contributing. Any contribution to his parents will be appreciated. Please support as much as you can.

Gaurav’s Condition:
Our Son, Gaurav, at a very early age of 5 months, is diagnosed with SMA Type 1, one of the most severe, early-onset forms of Spinal Muscular Atrophy. The disorder attacks the baby’s nerves and muscles, and as it progresses, makes it extremely difficult for them to carry out basic activities like sit up, lift their head, swallow milk, and even breathe.SMA affects 1 in 10,000 babies and is the No. 1 genetic cause of infant death worldwide.

We, as Gaurav’s parents, want to give him, a lively and happy child, his best chance to not only survive but also live a fulfilled, long and normal life.

TREATMENT OPTIONS IN INDIA:
As of now, there are no treatment options available in India for this invisible killer. We are extremely fortunate to have his diagnosis early because it gives us a chance to fight this before his symptoms become severe. Our only hope for Gaurav to have a normal life is to be able to import Zolgensma, a one-time gene replacement therapy, which in his current state could be a potential cure. Zolgensma comes at a steep cost of INR 16 crores (USD $2.1 million).

WHAT YOU CAN DO TO HELP :

  • Donate money. Please donate with your heart so we can save our Gaurav's life.
  • Contribute your time. We are in for the long haul in our fight against this deadly disease. The best course of action is to raise awareness and get the necessary infrastructure set up in India. Only time and continuous lobbying will contribute to long-lasting change.
  • Spread the word. Healthy parents could have a genetically affected baby. Genetic testing is in a nascent state in India, with limited labs and clinics available for diagnosis. Tell others about genetic testing, so this becomes a common practice as it is in most western countries like the USA and Canada, where genetic screening is part of post-natal care.

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