This is our first child,a sweet boy who we have named cubby.Cubby is a brave child, merely 06 month old who is fighting a deadly disorder called Spinal muscular atrophy.
Spinal Muscular Atrophy is a terrible disease that prevents our kid to even move his hands,feet.He can't even control his neck,has difficulty in swallowing milk and has severe breathing problems.
The worst part is SMA is a life threatening disease and our cubby will not survive and will die soon without treatment.
When we visited clinic for possible treatment,we were in complete shock to know about the cost of treatment.
The only treatment available is an one time drug called Zolgensma vaccine,but the major issue is it's hefty cost,2.1 million dollar.
We are a middle class family,and after all our efforts,it is impossible for us to arrange such sum on our own.
Friends,our situation is very desparate.We need help of you all to arrange this heavy sum for our baby cubby to let him enjoy living in this beautiful world.