Help People Affected With Rare Disease Have A Sustainable Living | Milaap
Help People Affected With Rare Disease Have A Sustainable Living
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    from Bengaluru, Karnataka



I am Chaithra, an independent journalist. During my visit to Shivamogga I came across this rare disease named, Handigodu ( it is named after the village ). It was first discovered in 1974.

Patients are also likely to witness swelling in the hips and knee joints, which can be seen as early as 25 years of age. The syndrome is of following types: dwarfism, handicap. A person can suffer from both handicap and dwarfism. There can also be deformation of the limbs. While most patients are women, a higher mortality rate has been noted in men.

There are around 300 such patients who needs your help.

Due to irresistible joint pain they find it hard to work for their living. To make their life self sustain with easy handicraft making I would want to start an initiative to help them. By this initiative I would also like to raise awareness regarding their rare condition.

To make that happen, I would be needing your support to fund for the initiative.

Note: It's not an NGO or a business module. It's just a start of something. 

Read more on the issue: A mysterious disease

Please come forward to donate for a cause. 

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