Baby Deeksha on her birthday
“I noticed a glassy tinge in her right eye, I knew that wasn’t normal. Everything else was fine with her, she didn’t have a fever or wasn’t feeling weak, but her eye… I never imagine that it would be cancer. She can lose her sight and life to this without treatment.” – Kamala, mother
Baby Deeksha is terrified of leaving the houseThe trip to the hospital for Deeksha’s chemotherapy is a difficult one for the parents. As Ramesh carries Deeksha and walks out the door, her fear sets in. Kicking and screaming, Deeksha tries to pull away from him and go back inside. It’s the most painful sight for Kamala and Ramesh.
“She is scared all the time. Even when we took her to get her Aadhar card photo taken, she thought she was in the hospital and she screamed and cried the entire time. She thinks everything and everyone is going to cause her pain. It’s heartbreaking.” – Ramesh, father
With no regular work or income, the parents are struggling to afford the treatmentDeeksha is their only child. She is still learning to talk, but even the smallest word that she attempts to say is celebrated by her doting parents. She even started walking with support. Now they have nothing to celebrate. As Deeksha gets chemotherapy, sometimes crying her way through it, Kamala sits by her side, holding her hand telling her everything will be fine.
“But I know that there’s so much more we have to do. She needs to continue getting chemotherapy, but we don’t have the means to afford 8 lakhs. My husband hasn’t been able to go to work regularly for the past two months because of the hospital visits. He does whatever little work he gets, farming, laying stones…anything to get a little money.” – Kamala