“She cries inconsolably at night and I have to rock her to soothe her. When I try to lay her on the bed, she tosses and turns for a while before flinging her arms open, asking me to hold her. Earlier, she used to sleep well on her side, cuddled close to me, but now it hurts her because of her swollen tummy.”-Soni, mother.
‘Her yellow-tinged eyes haunt us, we are scared of losing our first child’Soni and Mukesh clearly remember the day they brought Baby Amrutha home for the first time. Close relatives had gathered around and they were pouring blessings on the new ‘Mahalakshmi’ of the house. Amrutha’s cute face and chubby arms were smothered with kisses as the new parents endearingly watched. Everyone wished her good health, but fate had other plans. At just 3 months of age, her eyes and body started turning yellow. Mukesh believed that it may be jaundice initially, but tests at a good hospital proved him wrong. Their baby was suffering from a severe liver disease called biliary atresia, where the bile ducts in the liver are blocked or absent. These parents were even more shocked when they learnt that their first child’s liver was damaged beyond repair and only a liver transplant could cure her now. Every single day is spent in fear of losing her now.
“We had done everything right – from keeping her indoors to avoid infection, to taking her to the doctors every time she got even a small cold. Now, her eyes are becoming more yellow with every passing day. When she looks at us and babbles, we see pain in those eyes. We feel like she is trying to tell us how she feels, and it is heartbreaking.”-Mukesh, tearfully.
Amrutha is hungry and wants to eat, but she throws up everything in an instantDoctors have advised Soni and Mukesh to give Amrutha nutritious food like khichdi and dal water. When they feed her, she does not hesitate to eat at all. “In fact, she asks for more sometimes, which makes us think that our poor child is indeed hungry and needs more than mother’s milk,” says Mukesh, adding, “But within a few minutes, she vomits everything and cries. This is all happening because of this dreadful disease…I just pray that we can save her from it soon.”
Despite working overtime to save his baby, Mukesh is still short on moneyMukesh is as a construction worker, working on a contract basis for a builder based in Hyderabad. His shift typically starts at 9 am in the morning and ends at 6 am. But ever since his baby’s diagnosis, he has been working 3 to 4 hours extra every day, going back home at midnight even on some days. Despite all the hard work he puts in, he is able only Rs 2,000 per week, while his baby’s transplant costs lakhs of rupees. Mukesh is helpless and exhausted – both financially and mentally – he hugs his baby every day before going to work, fearing it might be the last time he’d be able to do that.
How you can helpBaby Amrutha’s tummy is swelling rapidly due to a severe liver disease that has completely damaged her liver. She is weak and cannot even feed properly. A liver transplant can end all her woes, but her poor father is struggling to save her.
Your kind contribution can ensure that this baby girl’s life is saved before it is too late