Dear friends, My name is Sanaz Khozini and I am here to raise funds for my 3yr old son Avyaan, who is suffering from Pierre Robin Syndrome.
What is Pierre Robin Syndrome?
Pierre Robin Syndrome (PRS) is a rare congenital birth defect in which an infant has a smaller than normal lower jaw, a tongue that falls back in the throat, and an upper airway obstruction that causes difficulty in breathing & eating (swallowing).
In June 2020, with the help of a Milaap fundraiser
, we were able to complete the first part of the Jaw Distraction (JD) surgery. Avyaan has been recovering well and is now able to eat food from his mouth - this wasn't possible earlier.
Now it's time for his next surgery where they will: (1) remove the JD wires (2) repair the cleft palate (3) Evaluate if Avyaan can breathe on his own so that they can remove his tracheostomy tube.
Why do I need your help?
As per the estimates provided by Manipal Hospital, the total surgery will cost INR 3.65 Lakhs (See the images below for details).
I won't be able to raise the funds needed for this on my own. I have only INR 45,000 left from the previous fundraiser and I have already exhausted all other options like bank loans, borrowing from friends and family, and selling my belongings including my jewelry.
I will be eternally grateful to you if you could support me in these difficult times and help me collect enough money for his surgery.How can you help?
- Contribute to this fund. Your small help will go a long way in helping Avyaan recover.
- Share this campaign with your friends and family & on social media platforms.
- Send your blessings and positive energy to Avyaan. Your prayers will help his recovery quickly.
Thank you for all your help and support.
Hospital No: MH002316948 (Manipal Hospital, Bangalore)