Abhishek, a 14-year-old resident of Raebareli, suffers from traumatic distortion and deformation of the limb which has affected his left leg.
He was just three years of age when the disease hit.
Sharing her son’s plight, Suman says that she had gone to a relative’s house when she discovered that Abhishek couldn’t stand.
The young one was taken to doctors, who said that the left knee was infected and needed urgent treatment.
“Abhishek’s father wasn’t there with me at the time as he had left the house after an argument. I got my son operated on,” she says.
Suman says that the leg wasn’t bent initially, but Abhishek’s adamant nature, coupled with bad advice from the doctors made it so.
“The doctor asked him to walk. We saw the leg bent a little. After we asked him to stop, he wouldn’t and now the leg has bent fully,” the mother says.
Abhishek, who studied till standard six, has stopped going to school after authorities asked him to transfer to another institution.
Worried about their son’s future, the parents asked him to pursue academics, but Abhishek remains unwilling. According to his mother, her son’s shy nature plays a deterrent.
“He wouldn’t want to go anywhere as he is embarrassed about the leg. My son is sensitive, even though he doesn’t say much, he understands the situation well,” Suman says.
Babloo, Abhishek’s father, works as a daily labourer. Babloo says that running the family with a meagre income of Rs 5,000 (USD 62.6) is difficult for him. The family of seven is solely dependent on him for food.
Apart from Abhishek, mother Suman also suffers from a disability in the leg, which has hindered her movement.
Suman says, “I work as a domestic help, washing clothes for a family, but cannot work for a prolonged period due to the issue with my leg.”
Abhishek’s parents are worried that the longer it takes for the 14-year-old to cure, the more his treatment is going to bite into their savings.
“We also have a daughter who is nearing adulthood. We have to get her married, but how?” Suman asks.
Both parents say that it’s difficult for them to see their son suffer like this. Suman says that had Abhishek been fully fit, he could have helped his father and bolster the family income, but that is not to be.
Babloo says, “People keep on promising, but when the times come for help, they all leave.”
“No one helped me. Even my siblings have deserted me. When they needed me, I was there, when it was my time, they left. I haven’t taken a single penny as loan from anyone,” he adds.
Babloo says that he has worked extra jobs and did not care for his own comfort as his aim is to provide for the family and his ailing son.
“I just want my son to get well. Amputate the leg if need be, but get him cured. Let him have his own life, enjoy it. I don’t expect him to look after me,” the father adds.
Along with money, Babloo says he is drained of all emotions, following his son’s prolonged illness.
Suman, on the other hand, says she wants her son to walk like others.
Meanwhile, Abhishek’s treatment would include:
Detailed Medical Evaluation
Detailed X-ray and other imaging protocol
Limb reconstruction in multiple stages
Physical rehab for nine to 12 months
His treatment would cost approximately Rs 25 lakhs (USD 31,294).