my name is manish parihar(clerk), I am raising funds to save the life
of our 17 months old little angel Aaradhya.
our daughter is suffering from life-threatening disease SMA(type-2),
until now for her treatments and medications, we've spent about Rs.4,62,000. which we arranged from savings & loans. But In the next 3 months
, we need Rs.16-crore (2.1 USD)
more for the Zolgensma One time Gene replacement Therapy.
this is not possible without your help.
I request all of you dignitaries with folded hands to support us in this fight with SMA.
Baby Aaradhya's Condition :-.
Our daughter, baby Aaradhya,
at a very early age of 17 months, is diagnosed with SMA Type 2,
one of the most severe, forms of Spinal Muscular Atrophy.
The disorder attacks the baby’s nerves and muscles, and as it progresses, makes it extremely difficult for them to carry out basic activities like sit up, lift their head, swallow milk, and even breathe.
SMA affects 1 in 10,000 babies, and is the #1 genetic cause of infant death worldwide.
Treatment Options :-
Our only hope for Aaradhya to have a normal life
is to be able to import Zolgensma, a one-time gene replacement therapy,
which in her current state could be a potential “cure”.
"Zolgensma" comes at a steep cost of INR 16 crores (USD $2.1 million). PLEASE HELP US :-
Donate & Share :- Please donate with your heart so we can save baby Aaradhya's life. Any contribution will be of immense help. Please share this fundraiser your friends and family, keep support & contribute as much as possible.
thanks to all of you...