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PLEASE HELP MY SON UNDERGO BONE MARROW TRANSPLANT FOR THALESSEMIA

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Updates (21)

Am a widow , who lost her husband about 10 years ago (2007). My Son Mihir who hasn’t seen his father was born with a rare genetic disorder called Thalassemia. It is a condition in which the body is unable to produce hemoglobin and hence requires blood transfusion every 3-4 weeks, lifelong. The only cure for this disorder is Bone Marrow Transplantation (BMT) from a fully matched donor

After years of searching I have finally found a fully matched unrelated donor from a donor registry. The total cost of BMT would be 30 lakhs (approx USD 47,000), if everything goes well. But in case of complications it may easily shoot up to 45-50 lakhs (USD 69000 - 77000). The treatment needs to happen immediately for him to survive.

My Elder Son was also diagnosed with Thalassemia , but due to my financial condition and lack of fully matched donor, I could not save him. That guilt and loss will never leave me. Please help me save my last hope and the my only reason to live......Have lost everything in this life and won’t be able to bear one more.

Am working in a pvt firm and have tried to ensure a life of dignity to my child (and my elder son while he was alive) but the amount required for him to survive is beyond my reach. Please do help me save my son and/or atleast this share this message to anyone who you think can help. A mother’s good wishes will always be with you

From

A mother who is searching for hope in this world

Sujata Banerjee

Mobile No: 8758511759.

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JCI Indrali Udupi supports Baby Mihir

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PLEASE HELP TO SAVE ME

My elder brother 3 days before his death

Report of regular blood transfusions

Baby Mihir with his mother and elder brother

My father who died when I was 3 months old

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7th January 2019

Dear Supporters,

Thank you all for your support.

Mihir is at home but is under observation. He had developed a cold and cough and is receiving medication for the same. We will be taking him for a check up this week. His hemoglobin levels have not improved, and because he was given a lot of steroids. Please wish for his speedy recovery.

Thank you all!
Sujatha (Mother)

27th November 2018

Dear Supporters,

It's extremely surprising to receive so much love and support for Mihir!

He has been discharged and is at home recovering well. He has problems like swellings in the limbs and bleeding in motion. However, these are all under control. He visits the doctor weekly once and receives an injection every 15 days.

I thank you all with all my heart. Please keep praying for his health.

Regards,
Sujatha (Mother)

19th September 2018

Dear Supporters,

Thank you all for your support.

My baby, Mihir, underwent a successful transplant with the help of each one of you. Though he had a complicated post-transplant course, he was discharged from the hospital later on.

However, my world has come to a standstill once again. Mihir fell sick once again. We rushed him to the hospital only to find out that my Mihir is now suffering from Bilateral Pneumonia and has to be admitted to the Intensive Care Unit. The doctors found that Mihir had severe Adenoviral Infection. The doctors say that this infection is really dangerous, especially for the transplant patients. There is only one medicine which can be used to treat Mihir, but the medicine is very expensive. Mihir shall need weekly infusion for 8 weeks.

Mihir needs ventilation and ICU care along with a very expensive medical treatment. The doctors have estimated the cost to be around Rs 20,00,000. This amount is beyond our capacity. We had already exhausted each and every penny on the previous treatment and transplant. You have supported us tremendously until now. I request you all to help us one more time to save Mihir.

I request each one of you to help us save our only son. I am not ready to lose him. Please help us in saving Mihir!

We shall be obliged to you forever!

Thank you,
Sujatha