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Help My Child to fight very rare disease Short Bowel Syndrome


I am Rajesh Kumar from Pune, India. My child is suffering from a very rare disease called Short Bowel Syndrome(SBS) because of doctor's negligence and delayed surgery of blockage in small intestine. The problem which would have been treated easily is now life threatening and too expensive to afford. He is not able to digest food and get proper nutrition for his growth. Small bowel transplant is essential for his survival.

He is currently in PICU from 2.5 months on TPN( total parental nutrition and approximately 4 lacs a month hospital expense) and would be needing small intestine transplant in few months of time that will cost additional 25-30 lacs. His treatment is continued in Ruby Hall Clinic Pune.
Appreciate any financial assistance to continue my child treatment.

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30th September 2016
Dear all,

This is Athira from Milaap. This is a follow up note to Rajesh's email you have just received. We all came together to help baby of Rajesh recover but unfortunately he is not with us now. Your support has been overwhelming and gave the family strength and hope. Thank you all for the support and prayers.

As Rajesh mentioned, we can utilize the funds raised to help a child in similar situation. We can also go ahead with Rajesh's second option of creating a welfare fund in memory of the child which will help more than one child in a similar situation.

Give us a couple of days to structure this out and inform you. We will share these details over an email to each of you. However, if you wish to receive your donation back, you can reply to this email and we will proceed with the same.

Thank you once again for your support.


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