I am writing this with great hope. My Child, Disha (1 year 6
months) was born on 10/09/2015. She was seemingly healthy and full of smiles.
But later we noticed swelling back while sitting . Immediately we took her
to hospital and after multiple tests we received a shocking news that she had
been diagnosed with very rare genetic disease called Hurler Syndrome, also
known as MPS type 1. MPS 1 is an incurable, terminal condition resulting
from a very rare genetic disorder that leads to progressive skeletal, tissue,
and organ dysfunction. Incidence rates for this disorder are 1 in 150,000 live
births. Without treatment Hurler Syndrome will cause devastating
physical and cognitative problems and the life expectancy is very short.
Doctors have informed me that she require a Bone Marrow
Transplantation at the earliest (within 2 years old) as that would be the only
I am writing this in extreme need of financial help. I have
tried all possible ways to arrange the money required for her treatment but the
amount is beyond my reach.
Your kind support will be helpful for my child’s treatment. I
have enclosed her medical report and the estimated amount stated by the
hospital with this letter. Please study it and contact me in case of any
queries. Click on the 'Contact Organiser' button below to get in touch with me
Disha deserves a chance and we are in desperate need. Anything
that you can do to help us is a blessing. Your positive support will be
of great help.
Child Name: Disha
Father Name: Gowri Sankar G.K
Residency Address: 143, KamarajaPuram, St No 5,
R.S. Puram, Coimbatore – 641002.
If you are
interested in learning more about Hurler Syndrome please look at these sites: