Tanmay Sarkar, an 11 year old child, diagnosed with Pseudotrophic Muscular Dystrophy (PMD), a type of Duchenne muscular dystrophy (DMD) since last 4years. It’s a genetic disease which happens to 1 in 50,000 children, resulting in degeneration of his muscle cells and leads to premature death.
Due to this gene mutation, all the muscle cells of his entire body collapse day by day. The entire strength of his body is totally broke down. Now he is not able to walk and even stand up completely. His breathing system is crumpling day by day. He cannot breathe properly for lack of muscles in his lungs, diaphragms and intercostal muscles. He moved one place to another by the help of his dear ones (Mom, maternal uncles and grand mom grand pa) and support systems (Wheel Chairs, Aaya etc.). An artificial breathing system had been installed at his home to meet his need of oxygen level. Doctors said that the condition of his myocardium (i.e. muscle which helps to pump the hurt) has been worsening and it is at stage 2 because of degeneration of his muscle cells. His heart will function for 3 to 4 years more and after that, his heart will collapse, and that will be the end of his life. Now he is completely dependent on medicines and some support systems. Without medicines and therapies his life would not able to run any further.
Till now, there is no curable treatment for PMD and ongoing medical research is going on regarding PMD. Gene therapy and Stem cell replacement is one of the successful ways to make the patient cure from this. The only treatment to make the patient alive more is Physical therapy, drugs injection, inhalation and respiratory assistance.
Tanmay’s Mom Story:
But the biggest tragedy is that Mr. Sanjay Sarkar, i.e. Tanmay’s father left him and his mother for this disease. By his opinion that his mother is responsible for this calamity and she and her family should take responsibility of him. For this he filed divorce petition also. Now, Tanmay’s mother is the only earner of the family. We the family members (grandpa, maternal uncles of Tanmay) help her at our best. But that is not the upto our mark.
Why we need your assistance?
From last May (i.e. May 2015) monthly expenses for treatment of Tanmay are almost Rs. 20,000(USD 333.00) depending on his condition. Last year his family members spent more than Rs. 5,00,000 (US $ 8270.00) for his knee operation. But, now they are suffering due to lack of money. They spend every penny of our bank savings for the treatment of Tanmay and sold almost all of their property to run the medical expenditure of Tanamy. Since 4 years they spent almost Rs.(INR) 12,00,000(USD 19000) for his medical assistance. Last month, the doctor also suggested for his knee traction which will cost almost 3lacs. But they weren't able plan to do it because of these huge medicine and other expenditure burden.
How you can help Tanmay to fight Back?
Now he requires your financial assistance to keep him alive and active. Your small donation will be very helpful to the family of Tanmay.
- So kindly donate to your child of your choice between Rs. 100.00 to upto your level (US $ 2.00-$2000.00).
- Every penny will be counted.
- If you are not able to donate just share this link with your near and dear ones. Each share is equivalent to $20.00
We create a facebook page for Tanmay. From there you can get current status of Tanmay. Link is below.