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My name is Ashutosh Jha and I am raising funds for my 3 yrs old Daughter Radhika Jha who is suffering from Thalassemia Major and is undergoing treatment (Haplo Identical Bone Marrow Transplant) at Dharamshila Hospital, New Delhi (Reg. ID: C94242). The treatment is costing us Rs. 25-30 Lakhs and we need funds to continue the treatment and save her life.
She has a 1 year old brother Shivansh and he is also suffering from same. Currently both require blood transfusion twice in a month. As the time passes BMT success rate goes down. This is start of their life, later they would require blood more frequently. As we will delay in treatment, possible risk will be also increase day by day. So we want it to be done early. So we have to do BMT for both baby as soon as possible. To avoid lifelong blood transfusion and their side effect.
We didn’t found any 10/10 unrelated Bone Marrow Match, we tried our best but highest match we found with 8/10. No any doctor agreed to do BMT with that match. So we have only option to perform Haplo-identical BMT in Private Hospital. We have been explained that Haplo-identical BMT is currently not established as standard of care for Thalassemia Major, and same is carried out in institutionally approved clinical study.
All Govt. Hospitals including AIIMS does transplant only with 10/10 sibling as a donor.
She is feeling much better now Currently Radhika is discharged on day 28 after total 35 days of stay in Hospital. On 04th April 2018 transplant is done. She is feeling much better now. She started gaining lost weight during treatment and counts are also much improved. On day 40 HB count is 10.5 Platelet at 1,23,000 and TLC at 4.61.
Big salute to doctors Dr. Suparo Chakrowarti and Dr. Sarita Rani Jaiswal, nursing staffs and House keeping staffs who provided support 24x7 during our stay in hospital.
I am working in Amdocs Pune, our corporate insurance not giving cover for this as it comes under Genetic disease. So to arrange fund I have asked for donations from relatives, friends and colleagues.
All these done within our estimated estimate. Total expense till now ~26 Lakh and estimates for upcoming followups ~2.5 Lakhs. We had received ~18 Lakh from donations and rest from my savings and loans from friends and relatives. Now no more donation needed.
We are grateful for your help!
To know more about Haplo-identical BMT and hospital see below URL
http://www.dhrc.in/haploidentical-bmt.html
You can Send your blessings to Radhika on my personal mail forevercoolashu@gmail.com.
You can follow below facebook page to stay updated about Radhika.
ॐ सर्वे भवन्तु सुखिनः। सर्वे सन्तु निरामयाः ।
सर्वे भद्राणि पश्यन्तु । मा कश्चिद्दुःखभाग्भवेत् ।
ॐ शान्तिः शान्तिः शान्तिः ॥
सर्वे भद्राणि पश्यन्तु । मा कश्चिद्दुःखभाग्भवेत् ।
ॐ शान्तिः शान्तिः शान्तिः ॥
