Your support could save Baby Radhika from lifelong blood transfusions | Milaap
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Your support could save Baby Radhika from lifelong blood transfusions

My name is Ashutosh Jha and I am raising funds for my 3 yrs old Daughter Radhika Jha who is suffering from Thalassemia Major and is undergoing treatment (Haplo Identical Bone Marrow Transplant) at Dharamshila Hospital, New Delhi (Reg. ID: C94242). The treatment is costing us Rs. 25-30 Lakhs and we need funds to continue the treatment and save her life. 

She has a 1 year old brother Shivansh and he is also suffering from same. Currently both require blood  transfusion twice in a month. As the time passes BMT success rate goes down. This is start of their life, later they would require blood more frequently. As we will delay in  treatment, possible risk will be also increase day by day. So we want it  to be done early. So we have to do BMT for both baby as soon as possible. To avoid lifelong blood transfusion and their side effect.

We didn’t found any 10/10 unrelated Bone Marrow Match, we tried our best but highest match we found with 8/10. No any doctor agreed to do BMT with that match. So we have only option to perform Haplo-identical BMT in Private Hospital. We have been explained that Haplo-identical BMT is currently not established as standard of care for Thalassemia Major, and same is carried out in institutionally approved clinical study.
All Govt. Hospitals including AIIMS does transplant only with 10/10 sibling as a donor.

She is feeling much better now Currently Radhika is discharged on day 28 after total 35 days of stay in Hospital. On 04th April 2018 transplant is done. She is feeling much better now. She started gaining lost weight during treatment and counts are also much improved. On day 40 HB count is 10.5 Platelet at 1,23,000 and TLC at 4.61.

Big salute to doctors Dr. Suparo Chakrowarti and Dr. Sarita Rani Jaiswal, nursing staffs and House keeping staffs who provided support 24x7 during our stay in hospital.

I am working in Amdocs Pune, our corporate insurance not giving cover for this as it comes under Genetic disease. So to arrange fund I have asked for donations from relatives, friends and colleagues.

All these done within our estimated estimate. Total expense till now ~26 Lakh and estimates for upcoming followups ~2.5 Lakhs. We had received ~18 Lakh from donations and rest from my savings and loans from friends and relatives. Now no more donation needed.

We are grateful for your help! 

To know more about Haplo-identical BMT and hospital see below URL
http://www.dhrc.in/haploidentical-bmt.html

You can Send your blessings to Radhika on my personal mail forevercoolashu@gmail.com.

You can follow below facebook page to stay updated about Radhika.


 ॐ सर्वे भवन्तु सुखिनः। सर्वे सन्तु निरामयाः ।
 सर्वे भद्राणि पश्यन्तु । मा कश्चिद्दुःखभाग्भवेत् ।
 ॐ शान्तिः शान्तिः शान्तिः ॥

Radhika's Story Published in local news paper
Radhika's Story Published in local news paper
Radhika's Story Published in local news paper
Radhika's Story Published in local news paper
Radhika's Story Published in local news paper
Radhika's Story Published in local news paper
Hospital Bill till Pre BMT stage
Hospital Bill till Pre BMT stage
Estimate Certificate
Estimate Certificate
Ask for an update
24th October 2018
Dear Supporters,

Baby Radhika Completed 200 Days since her BMT on 04-04-2018, and getting a new life. She is doing well and living a normal life. Her HB is 11.8, TLC at 6600 and Platelets at 2 Lakhs. So all blood component with new Bone Marrow cells at normal level. She also got lost weight during treatment, Her weight is now at 13.5 kg. Her digestion system is back to normal now. We just have to avoid uncooked and Outside food.

This all become reality with help of all who has supported during her treatment, Doctors, Hospital staffs, Friends, Relatives, Colleague and many faces whom we also don't even know.

She still has to go to Hospital for monthly followups. Its bit hectic for her to travel to Delhi every month. Hopefully after next month she will have to go for bi-monthly followups.

Our total expenses has crossed 31 lakhs, And it is still increasing every followups. ~80000 we have to spend for each visit. We had already stopped taking any kind of donations 4 months ago. We had collected ~19 Lakhs from Different modes of Donations. Its huge support we received from all around.

Thank you all once again for all the support 🙏




Dear Supporters,

Baby Radhika Completed 200 Days since her BMT on 04-04-2018, and getting a new life. She is doing well and living a normal life. Her HB is 11.8, TLC at 6600 and Platelets at 2 Lakhs. So all blood component with new Bone Marrow cells at normal level. She also got lost weight during treatment, Her weight is now at 13.5 kg. Her digestion system is back to normal now. We just have to avoid uncooked and Outside food.

This all become reality with help of all who has supported during her treatment, Doctors, Hospital staffs, Friends, Relatives, Colleague and many faces whom we also don't even know.

She still has to go to Hospital for monthly followups. Its bit hectic for her to travel to Delhi every month. Hopefully after next month she will have to go for bi-monthly followups.

Our total expenses has crossed 31 lakhs, And it is still increasing every followups. ~80000 we have to spend for each visit. We had already stopped taking any kind of donations 4 months ago. We had collected ~19 Lakhs from Different modes of Donations. Its huge support we received from all around.

Thank you all once again for all the support 🙏




30th July 2018
Dear Supporters,
Thank you all for your support.

Baby Radhika is doing well at home. We have been following up with the doctors in the weekly-checkups. So far, there has been no complication.

She has lost weight. Doctors are suggesting that it will take time for her to completely recover and start her school.

Thank you for the love and support which you have shown towards us.
We shall keep you posted.

Regards,
Ashutosh
Dear Supporters,
Thank you all for your support.

Baby Radhika is doing well at home. We have been following up with the doctors in the weekly-checkups. So far, there has been no complication.

She has lost weight. Doctors are suggesting that it will take time for her to completely recover and start her school.

Thank you for the love and support which you have shown towards us.
We shall keep you posted.

Regards,
Ashutosh
14th May 2018
Dear Supporters,

Here is an update on Radhika's health.

After 35 days of stay in Hospital with grace of God and your wishes we returned back to home victorious.

Radhika's condition is stable now, but still she need too much care as she returned home from hospital's neat and clean sterile environment. She lost ~2.5 kg of weight during treatment. On the day of discharge her loose motion also controlled. It lasted after 25 days. Her TLC count was 2430, Platelets at 45000 and HB at 12.3. So all blood component started forming with new donor cells.

Radhika is felling happy to be back to home but she became too much irritable due to weakness. She need to be protected from any kind of infection. We need to stay atleast till day 100 (17th July) in Delhi only. As she have regular followup schedule during these period. Our major priorities will be to not to take out as much as possible, restrict others to meet her to protect her from infections. and to give her proper diet as recommended by doctor.

Today its day 40 She is feeling much better now. She started gaining lost weight and counts are also much improved. Her today's HB count is 10.5 Platelet at 1,23,000 and TLC at 4.61.

All these done within our estimated estimate. Total expense till now ~26 Lakh and estimates for upcoming followups ~2.5 Lakhs. We had received ~18 Lakh from donations and rest from my savings and loans from friends and relatives. Now no more donation needed.

It was never possible for us to get all these done so nicely without your help and support. I would like to thank all of you to bring back us on the track. 🙏

Big salute to doctors Dr. Suparo Chakrowarti and Dr. Sarita Rani Jaiswal, nursing staffs and House keeping staffs who provided support 24x7 during our stay in hospital.

Thank you all for the wonderful support. 🙏🙏🙏
Dear Supporters,

Here is an update on Radhika's health.

After 35 days of stay in Hospital with grace of God and your wishes we returned back to home victorious.

Radhika's condition is stable now, but still she need too much care as she returned home from hospital's neat and clean sterile environment. She lost ~2.5 kg of weight during treatment. On the day of discharge her loose motion also controlled. It lasted after 25 days. Her TLC count was 2430, Platelets at 45000 and HB at 12.3. So all blood component started forming with new donor cells.

Radhika is felling happy to be back to home but she became too much irritable due to weakness. She need to be protected from any kind of infection. We need to stay atleast till day 100 (17th July) in Delhi only. As she have regular followup schedule during these period. Our major priorities will be to not to take out as much as possible, restrict others to meet her to protect her from infections. and to give her proper diet as recommended by doctor.

Today its day 40 She is feeling much better now. She started gaining lost weight and counts are also much improved. Her today's HB count is 10.5 Platelet at 1,23,000 and TLC at 4.61.

All these done within our estimated estimate. Total expense till now ~26 Lakh and estimates for upcoming followups ~2.5 Lakhs. We had received ~18 Lakh from donations and rest from my savings and loans from friends and relatives. Now no more donation needed.

It was never possible for us to get all these done so nicely without your help and support. I would like to thank all of you to bring back us on the track. 🙏

Big salute to doctors Dr. Suparo Chakrowarti and Dr. Sarita Rani Jaiswal, nursing staffs and House keeping staffs who provided support 24x7 during our stay in hospital.

Thank you all for the wonderful support. 🙏🙏🙏
Content Disclaimer: The facts and opinions, expressed in this fundraiser page are those of the campaign organiser or users, and not Milaap.
Rs.746,373
raised of Rs.2,500,000 goal

265 Supporters

Beneficiary: Radhika Jha info_outline

Supporters (265)

A
Anonymous donated Rs.200
RK
Rohit donated Rs.501

Love u child. God bless you.

A
Anonymous donated Rs.2,100
PP
Piyush donated Rs.1,000

God bless her and I pray that she recover soon.

R
RanjanArun donated US $300

Keep the Faith!

A
Anonymous donated US $20

Hope she gets better soon!