We didn’t found any 10/10 unrelated Bone Marrow Match, we tried our best but highest match we found with 8/10. No any doctor agreed to do BMT with that match. So we have only option to perform Haplo-identical BMT in Private Hospital. We have been explained that Haplo-identical BMT is currently not established as standard of care for Thalassemia Major, and same is carried out in institutionally approved clinical study.
Big salute to doctors Dr. Suparo Chakrowarti and Dr. Sarita Rani Jaiswal, nursing staffs and House keeping staffs who provided support 24x7 during our stay in hospital.
I am working in Amdocs Pune, our corporate insurance not giving cover for this as it comes under Genetic disease. So to arrange fund I have asked for donations from relatives, friends and colleagues.
All these done within our estimated estimate. Total expense till now ~26 Lakh and estimates for upcoming followups ~2.5 Lakhs. We had received ~18 Lakh from donations and rest from my savings and loans from friends and relatives. Now no more donation needed.
To know more about Haplo-identical BMT and hospital see below URL
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सर्वे भद्राणि पश्यन्तु । मा कश्चिद्दुःखभाग्भवेत् ।
ॐ शान्तिः शान्तिः शान्तिः ॥