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Your support could save Baby Radhika from lifelong blood transfusions

My name is Ashutosh Jha and I am raising funds for my 3 yrs old Daughter Radhika Jha who is suffering from Thalassemia Major and is undergoing treatment (Haplo Identical Bone Marrow Transplant) at Dharamshila Hospital, New Delhi (Reg. ID: C94242). The treatment is costing us Rs. 25-30 Lakhs and we need funds to continue the treatment and save her life. 

She has a 1 year old brother Shivansh and he is also suffering from same. Currently both require blood  transfusion twice in a month. As the time passes BMT success rate goes down. This is start of their life, later they would require blood more frequently. As we will delay in  treatment, possible risk will be also increase day by day. So we want it  to be done early. So we have to do BMT for both baby as soon as possible. To avoid lifelong blood transfusion and their side effect.

We didn’t found any 10/10 unrelated Bone Marrow Match, we tried our best but highest match we found with 8/10. No any doctor agreed to do BMT with that match. So we have only option to perform Haplo-identical BMT in Private Hospital. We have been explained that Haplo-identical BMT is currently not established as standard of care for Thalassemia Major, and same is carried out in institutionally approved clinical study.
All Govt. Hospitals including AIIMS does transplant only with 10/10 sibling as a donor.

She is feeling much better now Currently Radhika is discharged on day 28 after total 35 days of stay in Hospital. On 04th April 2018 transplant is done. She is feeling much better now. She started gaining lost weight during treatment and counts are also much improved. On day 40 HB count is 10.5 Platelet at 1,23,000 and TLC at 4.61.

Big salute to doctors Dr. Suparo Chakrowarti and Dr. Sarita Rani Jaiswal, nursing staffs and House keeping staffs who provided support 24x7 during our stay in hospital.

I am working in Amdocs Pune, our corporate insurance not giving cover for this as it comes under Genetic disease. So to arrange fund I have asked for donations from relatives, friends and colleagues.

All these done within our estimated estimate. Total expense till now ~26 Lakh and estimates for upcoming followups ~2.5 Lakhs. We had received ~18 Lakh from donations and rest from my savings and loans from friends and relatives. Now no more donation needed.

We are grateful for your help! 

To know more about Haplo-identical BMT and hospital see below URL
http://www.dhrc.in/haploidentical-bmt.html

You can Send your blessings to Radhika on my personal mail forevercoolashu@gmail.com.

You can follow below facebook page to stay updated about Radhika.


 ॐ सर्वे भवन्तु सुखिनः। सर्वे सन्तु निरामयाः ।
 सर्वे भद्राणि पश्यन्तु । मा कश्चिद्दुःखभाग्भवेत् ।
 ॐ शान्तिः शान्तिः शान्तिः ॥

Radhika's Story Published in local news paper
Radhika's Story Published in local news paper
Radhika's Story Published in local news paper
Radhika's Story Published in local news paper
Radhika's Story Published in local news paper
Radhika's Story Published in local news paper
Hospital Bill till Pre BMT stage
Hospital Bill till Pre BMT stage
Estimate Certificate
Estimate Certificate
Ask for an update
14th May 2018
Dear Supporters,

Here is an update on Radhika's health.

After 35 days of stay in Hospital with grace of God and your wishes we returned back to home victorious.

Radhika's condition is stable now, but still she need too much care as she returned home from hospital's neat and clean sterile environment. She lost ~2.5 kg of weight during treatment. On the day of discharge her loose motion also controlled. It lasted after 25 days. Her TLC count was 2430, Platelets at 45000 and HB at 12.3. So all blood component started forming with new donor cells.

Radhika is felling happy to be back to home but she became too much irritable due to weakness. She need to be protected from any kind of infection. We need to stay atleast till day 100 (17th July) in Delhi only. As she have regular followup schedule during these period. Our major priorities will be to not to take out as much as possible, restrict others to meet her to protect her from infections. and to give her proper diet as recommended by doctor.

Today its day 40 She is feeling much better now. She started gaining lost weight and counts are also much improved. Her today's HB count is 10.5 Platelet at 1,23,000 and TLC at 4.61.

All these done within our estimated estimate. Total expense till now ~26 Lakh and estimates for upcoming followups ~2.5 Lakhs. We had received ~18 Lakh from donations and rest from my savings and loans from friends and relatives. Now no more donation needed.

It was never possible for us to get all these done so nicely without your help and support. I would like to thank all of you to bring back us on the track. 🙏

Big salute to doctors Dr. Suparo Chakrowarti and Dr. Sarita Rani Jaiswal, nursing staffs and House keeping staffs who provided support 24x7 during our stay in hospital.

Thank you all for the wonderful support. 🙏🙏🙏
18th April 2018
Dear Supporters,

Radhika's health is improving but its bit slow, She has continuous loose motion 10-15 times daily since last 8-9 days, now it is improved. She was not taking any bite of oral food since 8 days, necessary nutritious were getting transfused directly into blood.  Yesterday she started eating something.

Today(18th April) is day 14. In normal case on day 20-22 patient gets discharge, but for our case we are expecting it now 25-28 days so discharge could be done by 30th Apr.

She is under supporting care, she has been transfused 1 unit of red blood and 1 unit of platelets on 16th Apr. Currently new stem cells is just getting activated and forming new blood. Her HB level increased to 14 by yesterday and today it further increased to 16. On 15th Apr TLC count was 0.02, On 16th it was 0.1 that further improved yesterday to 0.21 and today it is now at 0.41. By discharge its expected to be at ~4.0 with new stem cells.

Till now everything is fine and under control. Hope all should go smoothly in future also and she will live blood transfusion-free rest of life.
Thank you for being with us and supporting us in our difficult time. 🙏


Thank you all once again for all you support and love.

4th April 2018
Dear Supporters,

Its big day for Radhika and us. It is the day of Transplant. Till now she received all the chemo very nicely. Many of them had a few side effects, pain and other complication. But Radhika has overcome all these so nicely. All it happen with the grace of God and pray of well-wishers. Otherwise, for a 3-year-old child, It was never easy to spend ~10 days in the closed room. But it's not over we have to spend ~20 more days here only.

Today my Stem cells will be collected and transplant will be done overnight. Next 10 days would be more challenging for us, as currently her cell count is approaching 0 and new cells will take at least 10 days to grow. She has to be dependent on supportive care during this period. Other complications also might occur during this but we hope God will give more strength to Radhika to bear all these.

Funds we are still gathering at least for another 10 days, as we are still short of ~4-5 Lakh from the actual estimate. Hope we will able to arrange all these. Do share this campaign further with your friends and family to help us in raising funds towards her treatment. 

Thank you all for the support!!
Content Disclaimer: The facts and opinions, expressed in this fundraiser page are those of the campaign organiser or users, and not Milaap.
Rs.746,373
raised of Rs.2,500,000 goal

265 Supporters

Beneficiary: Radhika Jha info_outline

Supporters (265)

A
Anonymous donated Rs.200
4 months ago
RK
Rohit donated Rs.501
4 months ago

Love u child. God bless you.

A
Anonymous donated Rs.2,100
4 months ago
PP
Piyush donated Rs.1,000
4 months ago

God bless her and I pray that she recover soon.

R
RanjanArun donated US $300
5 months ago

Keep the Faith!

A
Anonymous donated US $20
5 months ago

Hope she gets better soon!