Why am I fundraising?
I am sharmila, raising funds for my 4 year old daughter Aseela suffering from deadly disease Thalasemmia Major. A child with Thalasemmia Major do not have the Red Blood Carpasules(RBC) generated in normal 20 days life cycle. Once the RBC count goes down, we need to manually give a fresh blood to baby from a blood donor. She was diagnosed with Thalasemmia Major when she was 3 months old. 48 blood transfusions were done so far as a temporary solution. Blood transfusion gives her a lot of pain. The potential treatment to cure the disease is to do the Bone Marrow Transplantation which costs 35 lakhs as minimum bill amount. Her father is a cycle coolie working at a shop for daily wages. Our family members stem cells do not match with Aseela, so third party donor who matches her blood group has to be identified. The treatment process of the donor stem cell costs are high which we were not able to afford. We would request donations for Aseela's BMT treatment. We had spent most of ours savings for her treatment.
What do I plan to do with the funds?
A bone marrow or cord blood transplant is a process to replace unhealthy bone marrow with healthy bone marrow.A procedure to replace damaged or destroyed bone marrow with healthy bone marrow stem cells. Bone marrow is the soft, fatty tissue inside your bones. Stem cells are immature cells in the bone marrow that give rise to all of your blood cells.
Doctor advised to do the BMT treatment as early as possible. Baby is normal with the blood transfusions now. If blood level goes down , she suffers vomiting and guiddiness.
I had attached the bill report from the doctor for this BMT Treatment. I would request kindly to do the needful
FAQs
Do government provide aid for this treatment?