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My name is Rupali Ramtekkar and I am here to raise funds for my only son Yuvaan Ramtekkar who is 1 year old. He has been diagnosed with 'Spinal Muscular Atrophy Type 1', a very rare genetic disease.
SMA is treated with the world's most expensive drug 'Zolgensma' which costs 16 crore rupees as it is not available in India.
SMA is a deadly genetic disorder in which the gene that is responsible for the entire muscle function of our body is defective. There is a breakdown of the muscles of the brain and Spinal cord and the brain cannot send signals to the rest of the body. Day-to-day activities become difficult. Breathing, eating, swallowing, or even just turning on the bed is a painful process.
Seeing our son in pain every day with the requirement of such a large amount of money to save him has broken us.
I request everyone of you to come forward and donate at your convenience. Your small help can save my son.
SMA affects 1 in 10,000 babies and is the #1 genetic cause of infant death worldwide.
Zolgensma comes at a steep cost of INR 16 crores (USD $2.1 million).
Please come forward to support my cause. Any contribution will be of immense help. Do contribute and share this campaign link with your friends and family.
