Please Help Yuvaan Ramtekkar Get The World's Costliest Drug! | Milaap
This is a supporting campaign. Contributions made to this campaign will go towards the main campaign.
Please Help Yuvaan Ramtekkar Get The World's Costliest Drug!
1%
Raised
Rs.2,725
of Rs.1,000,000
3 supporters
  • RD

    Created by

    Richa Dheeraj Shroff
  • YR

    This fundraiser will benefit

    Yuvaan Ramtekkar

    from Pune, Maharashtra

My name is Rupali Ramtekkar and I am here to raise funds for my only son Yuvaan Ramtekkar who is 1 year old. He has been diagnosed with 'Spinal Muscular Atrophy Type 1', a very rare genetic disease. 

SMA is treated with the world's most expensive drug 'Zolgensma' which costs 16 crore rupees as it is not available in India.

SMA is a deadly genetic disorder in which the gene that is responsible for the entire muscle function of our body is defective. There is a breakdown of the muscles of the brain and Spinal cord and the brain cannot send signals to the rest of the body. Day-to-day activities become difficult. Breathing, eating, swallowing, or even just turning on the bed is a painful process.

Seeing our son in pain every day with the requirement of such a large amount of money to save him has broken us.

I request everyone of you to come forward and donate at your convenience. Your small help can save my son.

SMA affects 1 in 10,000 babies and is the #1 genetic cause of infant death worldwide.

Zolgensma comes at a steep cost of INR 16 crores (USD $2.1 million). 

Please come forward to support my cause. Any contribution will be of immense help. Do contribute and share this campaign link with your friends and family.

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