I Ramsingh Thakur, belong to a poor family from the Uppal (hyderabad). I worked in a private company till last 2 years.
Since every thing was going good. I was caught by a disease ILD (INTERSTITIAL LUNG DISEASE AND SCHELERODERMA) which is in advanced stage.
This is a blood tissue connective disorder, it will destroy /damage once by one each organ. Already my lungs, skin, bones has been damaged, heart and kidney yet to effected. Even I lost my father due to cardiac arrest last year, when he came to know about my disease.
I am surviving with wife, two kids, mother and sister. (One sister died due to brain tumor few years before). For the treatment purpose I shifted to uppal post my father's death.
In current condition, i cannot walk, talk for continuously for five minutes even. I'm on 24/7 oxygen at home, resigned job long back. breathing, eating, sleeping everything is became difficult for me. As per doctors statement this disease doesn't have any permanent treatment, only we can stop the progress of the disease. The medication which i have to take, are very expensive, from that 1 tablet named mycophenolate mofetil 500mg (6tablets per day) need to take, apart this other 8 different tablets which i have to take every day.
It became very difficult for me to buy tables every month, already sold hard earned property one plot and spent everything for my treatment in continental hospital and ZOI hospital. Now we are struggling for survival and treatment.
Currently taking regular treatment in NIMS hyderabad hospital.
Funds need to buy medicines which are life saving. Due to high expensive medicines, unable to effort for treatment. ILD is a lung disease, currently in complete advanced stage. Only can drag the life span for few years with continuous medicine. Currently it bones, skin and lungs have been damaged. Bones - lost the stamina, cant even lift small items. Skin - completely tightened, colour changed to black. Lost 25 kgs weight from 80 to 55. Fingers has been bending , blood coming out from the fingers regularly. Lungs- more than 50% part is damaged. Spent around 6.5 lakhs till date.
The disease is ILD (Interstitial lung disease) and Scheleroderma advanced stage. Which is a blood tissues connective disorder, where own blood cells will damage the organs of the body one by one. Does not have any cure but can stop the progression of disease for certain time.
Looking for your kind help in this regards.