Five years back, Rohini and Nagaraj were devastated when they lost their 3-year-old daughter Bhavani to pneumonia. Their world came crashing down. Rohini was inconsolable for months. Then, more than a year later, they had another child - Pavan. Unfortunately, at birth, he was diagnosed with Cerebral Palsy.
Pavan cannot even sit down on his own. Pavan recognises only his parents and cannot understand instructions. To strengthen his muscles and joints, Pavan needs to do many stretching exercises daily, which have been prescribed by his physiotherapist.
He also needs to take medicines which help in strengthening his nervous system. Rohini says “My life is dedicated only to Pavan now. Feeding him, bathing him and getting his exercises done take up the entire day. Even though he can’t communicate with us, I know how helpless he feels and I have to do everything it takes to make him feel loved”.
Nagaraj is a super handyman - an electrician, plumber and carpenter rolled into one. Nagaraj is employed with a contractor and earns Rs. 12,000 every month. He says “We have tried to leave no stone unturned for Pavan’s treatment. We have exhausted all of our savings. Rohini is such a good mother and without her, I would not have been able to survive all that we have been through”. The couple’s first son Ganesh is studying in the class 9. He has been a good student and is a great help at home in ensuring Pavan’s well being.
Rohini’s mother faced a paralytic attack and passed away in 2013 after months of running around from one hospital to the other. “My mother was a constant source of support during the upbringing of our children. With her no more, it is upto me to manage single-handedly,” says Rohini. Rohini had to quit her job from Laxmi Maternity Hospital to take care of Pavan full time.
Pavan’s medicines were discontinued 6 months back because Nagaraj has not been able to afford them. Even Ganesh’s school fees has not been paid. With growing children and Nagaraj’s limited remuneration, it will become very difficult for the couple to ensure the best care for Pavan.
How can you help?
Nagaraj and Rohini have been through a lot over the last 5 years and they have been drained of resources financially. They were referred to Milaap by a distant relative.
Pavan’s movements are restricted to his house because of his condition. A wheelchair will go a long way in ensuring Pavan gets to explore life outside home. Restarting the regular medication will help Pavan to cope up with the disability much better.