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Liver Disease Caused Swollen Tummy And Intense Itching In 11-year-old

"For the first time in my life, I regret not being an educated parent. When my son was 6-month-old his stomach started bloating. We realized  that he has some serious problem when he developed aggressive itching. Everytime he complained of stomach pain, I took him to the local doctors. They gave medicines for a temporary relief. But a month ago he was bedridden with high fever and severe stomach pain, I  borrowed money and rushed him to a private hospital in Hyderabad. Doctors said he was suffering from a liver disorder and his condition is very critical. I do not know what to do and I can never forgive myself for the suffering he had gone through all these years." - Nageshwar.

Aditya's liver disease was undiagnosed till he turned 11

11-year-old Aditya has been suffering from unbearable stomach pain and tiredness since his birth. His parents took him to local hospitals but he was given only pain relievers.  To the shock of his parents, his condition got worse and now Aditya is fighting to even take a breath and diagnosed with a life-threatening liver disease.


 "He has severe breathing problem and drags himself with all the might and strength left in him to the nebulizer for oxygen. He feels humiliated when other children tease him for being too short for his age. He mostly locks himself in the house and feels lonely. Whenever he asks 'Naana, why am I like this? Will I ever look normal in life?' my heart flinches with pain," - Nageshwar, Aditya's father.

Only a surgery can save Adiya from this fatal disease

This 11-year-old was diagnosed with a liver metabolic disorder called glycogen storage disorder which is an inherited disease caused by the buildup of glycogen in the body cells. This buildup impaired the function of Adiya's liver and caused growth retardation. Aditya's liver has enlarged causing difficulties in breathing. Only an urgent liver transplant can save him from this cruelty.


"All his life he has only known pain and suffering. He constantly cries due to severe stomach ache and is consumed by weakness. He cannot even carry his school bag. At times, due to itching, he scratches himself so aggressively that his skin peels off and blood oozes out. The sight of him laying on the bed weekly with blood stains and broken skin is unbearable. I haven't seen a day passed without my wife crying seeing our son's pain at this young age." - Nageshwar.

Father who earns only Rs 300 a day cannot afford a life-saving treatment for his son

Nageshwar who is a fruit vendor is the sole breadwinner of the family. With his little income of Rs 300 a day he runs his family. He had already spent 3 lakhs and now unable to afford a surgery for his son which costs 16 lakhs.
"With a few fruits that I sell, I won't be able to afford this expensive treatment which can save my son.  I have spent all my earnings to diagnose the problem and now I am left penniless. I ran to every person I knew to get help but always returned hopeless," - Nageshwar.

How You Can Help

11-year-old Aditya is fighting for life with a severe liver disorder, which is not allowing him to breathe and has caused growth retardation. He should immediately undergo a liver transplant, without which he may never be able to make it. Your kind donation may help him survive.
Estimation letter
Estimation letter
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20th August 2018
Dear Supporters,

Thank you for your tremendous love and support.

Master Aditya is stable and we are waiting for the donor evaluation.
Once we get the clearance for the donor then will plan the liver transplant for him. Potential planned donor is his mother Mrs.Nagamani.

We are all hopeful about his recovery. We shall keep you posted.

Regards,
Jayalakshmi
24th July 2018
Dear Supporters,

Thank you for your love and support. This means a lot to us.

Aditya is now doing okay and the pre-transplant tests are yet to be done. His mother or I may be a potential donor. Once the tests are done and the donor is identified, the doctors will take a call on when to schedule the operation.

He is being observed closely so the necessary treatment can be given to my child at the earliest. Thank you everyone once again. We shall keep you posted.

Regards,
Nageshwar
Content Disclaimer: The facts and opinions, expressed in this fundraiser page are those of the campaign organiser or users, and not Milaap.
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Beneficiary: P. Aditya info_outline