Help 2-Year-Old Saavi To Undergo Kidney Transplant | Milaap
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Help 2-Year-Old Saavi To Undergo Kidney Transplant

Baby Saavi was diagnosed with Congenital Nephrotic Syndrome when she was 3 months old and lost both her Kidneys. Since then she had been hospitalized 4 times. 

She is on Peritoneal dialysis .Like any other normal kid she can't be let loose to play and walk around. 2-3 hrs a day is all she gets to get out of bed away from the dialysis system and become a kid do some activities. Her Kidney Transplant is required to be done which requires funding as she is not covered under any insurance cover.

She is 2 years old today and is on atleast 4 Antihypertensive with high doses. Her growth is also dependent on her activities like any other kid.
Her Nutrition is only medicines which gives her Iron, Sodium, bicarbs and all other necessary minerals, Vitamins required by the body.

None of the parents Kidneys match, her needs are special, her food is special, and above all she needs special care.

The money raised here would be used to upkeep her till she meets the right match for her transplant and subsequently for her Kidney transplant .

(Please Help us to find a Kidney donor with A+ Blood group, anyone or family member, accidental case, brain dead, last stage of comma case willing to donate kidney).
Saavi's Report
Saavi's Report
Summary
Summary
First time diagnosis
First time diagnosis
First time diagnosis_pg2
First time diagnosis_pg2
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6th August 2018
Saavi is awaiting transplant but first we have to figure out now her nephrectomy. The dics here are saying they will put her on chemo and Haemo post neprectomy which is high risk. They could not save her peritoneal layer in neprectomy and cant guarantee which could enable her peritomeal dialysis to be done post nephrectomy. Only option is to grow her a little more so that she can survive the harsh Haemo and Chemo.

Wondering docs abroad are all able to save peritoneal layer to enable kids run peritoneal dialysis. Chatted with moms in Phili, Chicago, Cincinati , kids are all doing fine.But here what is lacking? Just one surgery is a blocker and putting her to a 90% greater risk then before.
Saavi is awaiting transplant but first we have to figure out now her nephrectomy. The dics here are saying they will put her on chemo and Haemo post neprectomy which is high risk. They could not save her peritoneal layer in neprectomy and cant guarantee which could enable her peritomeal dialysis to be done post nephrectomy. Only option is to grow her a little more so that she can survive the harsh Haemo and Chemo.

Wondering docs abroad are all able to save peritoneal layer to enable kids run peritoneal dialysis. Chatted with moms in Phili, Chicago, Cincinati , kids are all doing fine.But here what is lacking? Just one surgery is a blocker and putting her to a 90% greater risk then before.
23rd June 2018
Saavi is doing good now and she has turned 3 years 3 months. She has to undergo neprectomy  first in prep of transplant. Due to WT1 she is susceptible to have developed a tumor in kidney which should be removed first.
Saavi is doing good now and she has turned 3 years 3 months. She has to undergo neprectomy  first in prep of transplant. Due to WT1 she is susceptible to have developed a tumor in kidney which should be removed first.
19th May 2018
Dear Supporters,

Thank you for the wonderful support that you have shown towards Baby Saavi. She is doing better now compared to earlier. She turned 3 years old on 5th April.

At present, she is undergoing medication and dialysis. The doctors suggest that she will be undergoing dialysis until we find a donor. Once, we find a suitable match she will be undergoing the transplantation procedure. To find a suitable donor, we have got her registered in multiple directories and organizations.

Thank you for the wonderful support. Please do pray for her health and speedy recovery. Will keep you posted.

Regards,
Nisha
Dear Supporters,

Thank you for the wonderful support that you have shown towards Baby Saavi. She is doing better now compared to earlier. She turned 3 years old on 5th April.

At present, she is undergoing medication and dialysis. The doctors suggest that she will be undergoing dialysis until we find a donor. Once, we find a suitable match she will be undergoing the transplantation procedure. To find a suitable donor, we have got her registered in multiple directories and organizations.

Thank you for the wonderful support. Please do pray for her health and speedy recovery. Will keep you posted.

Regards,
Nisha
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Rs.1,000
raised of Rs.30,000 goal

1 Supporter

Beneficiary: Saavi Chaudhary info_outline

Supporters (1)

Rahul
Rahul donated Rs.1,000
about 1 year ago