Each year, over 20000 children(<15yrs) in India are diagnosed to have Acute Leukocytic Leukaemia (ALL). This subtype progresses very fast and if not diagnosed in early stages, the fatality rate could be very high. However, the overall survival rate in advanced countries like USA or even in Singapore is pushing above 90% while in Indian context, the event free survival after 5 years of diagnosis could be actually less than 50%. In case of Acute Myloid Leukemia, though less in occurrence, the survival rate would probably drop further below 30%. The 30-40% swing of survival rates between India and other developed nations depends on three key factors:
1.Availability of sophisticated equipments that are capable of deeper scrutiny at genetic level and thus plan treatment protocols with greater efficacy.
2.Quality of health and hygiene in the treatment ecosystem is directly linked to rate of incidence for opportunistic infections, eventually proving fatal for many of the grossly immunity compromised population under treatment.
3.The treatment protocols for ALL are complex and lengthy and often exceed 30 months. The role of caregivers at family level is very crucial and a slight error in understanding, interpretation or non compliance to protocols can be detrimental .
The Ujaas Foundation specifically addresses point 2 and 3 through its counselling services and creating access to relevant and contemporary information , more importantly in context of India. UJF has launched Project KNowleuk, an ambitious initiative to generate relevant content for caregivers in form of publishing an multi-lingual handbook . This book is in its early stages of drafting and will take about four months to be published.
UJF solicits generous support from the donor community so that this high impact project can be taken to completion. Your support is going to make a huge difference in saving countless young lives that go down today because of the lack of knowledge of their caregivers, sadly more often those being the parents. They would have otherwise mortgaged their belongings to fund the treatment. What could be more tragic than this?