Farmer Begs For Help To Save His 7-month-old From Liver Failure | Milaap
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Farmer Begs For Help To Save His 7-month-old From Liver Failure

"This is the first time in my life that I regretted not finishing school. I was so foolish to think my son’s yellow skin was normal. His liver has been failing since he was born. He has slowly been dying, and I did not realize it until he turned critical. For 7 months, I have complained to people that my baby cries all the time, and that I am exhausted. Now I know how much pain he is in.” - Kumud (father).
7-month-old Anurag has Niemann-Pick disease where excessive fat accumulates in cells. This fat buildup causes cells to malfunction and eventually die. It first affects the liver and spleen, then causes difficulty in learning and speaking. Without treatment, Anurag will start having seizures, find it difficult to move and even swallow.

Ignorance might have cost baby Anurag his life, yet there is still time to save him

“I gave birth to Anurag in the village hospital. He looked yellow when I first saw him. I thought that is normal for a baby. He had white motion, which is when my neighbor said it could be jaundice. Assuming it would go away in a few days, my husband and I did not worry.” - Lalita (mother).

Anurag’s jaundice did not clear up. He continued to fall sick. He would keep crying throughout the day. His temperature began to spike. The local doctors gave regular medicines. When that did not help even after a few months, Lalita’s brother urged them to take him to Guwahati Medical College. Tests showed that the baby’s liver was completely enlarged.

These parents struggle to understand the rarity or the severity of Anurag’s disease 

“They told us to come to Excelcare. Here, after more tests, the doctor told us that our son has liver failure. My husband and I were not able to understand what was happening. Finally, my brother, Kumud, sat with the doctor to get the details and explained it to us.” - Lalita
Anurag now has end-stage liver disease because of Niemann-Pick. His liver is irreversibly damaged, completely scarred and is affecting the rest of his body. They constantly have drain his stomach of fluid to reduce bloat in the tummy, and he is on heavy medications to control symptoms.

This baby has been in pain ever since birth and there is only one solution to it

“It’s been two years since our wedding. Anurag is our only child. I cannot believe that I will lose him without this surgery.” - Kumud
Anurag’s belly bloats so much that he screams when they touch it. These parents find it difficult to hold him without causing him pain. He cries all the time, hardly sleeps and is unable to swallow milk. This disease will end his life even before he turns 1, if he does not get a liver transplant in the next few weeks.

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“We got Anurag discharged from the hospital. I do not have money or a place to stay in Guwahati. We can do the surgery as soon as we have the funds, but it will take us more than 40 years to earn that much, and we would have to beg the world to get it right now.” - Kumud
Kumud is a paddy farmer. He can harvest only once a year, making just about Rs. 48000 for the year. He uses this money to support his family over the next 12 months. Lalita used to work with him until she had the baby. The family never needed much money in their lives as they usually grow their own food. Now, they have spent over Rs. 1.5 lakhs on tests and medicines, after borrowing from several relatives and friends. They need Rs. 20 lakhs to save Anurag’s life – money that they have never seen in their lives.
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Estimation Letter
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18th April 2019
Dear Supporters,

We'd like to thank you for the wonderful support that you have shown towards Anurag Nath. It means a lot to all of us. However, we have some news to share with you today.

Anurag needed treatment for End-Stage Liver Disease for survival and the campaign was started to fund the same. However, Anurag's parents do not wish to go ahead with the treatment and had left the hospital against medical advice.

After discussing with the family and their agreement, and doctor's consent funds raised for Anurag would be utilized to help another patient named Gauranga Mali who also has deadly genetic liver disease and is due for the surgery next month.

Here is the campaign link for the same:
https://milaap.org/fundraisers/gauranga-mali

As per our Refund Policy under Terms & Conditions (https://milaap.org/about-us/terms-and-conditions), donors have the discretion on how their funds should be used which is as follows:

1. Funds raised for Anurag Nath to be redirected to Gauranga's campaign - https://milaap.org/fundraisers/gauranga-mali

2. You can opt for a refund for the contribution made and we will be happy to help you with the same.

Please reply to this email before the 25th of April, 2019 stating your preference for 1 or 2. After which the funds will automatically be mapped towards Gauranga's campaign.

Our prayers and wishes are with Anurag and his family. Thank you again for your support and generosity.


Dear Supporters,

We'd like to thank you for the wonderful support that you have shown towards Anurag Nath. It means a lot to all of us. However, we have some news to share with you today.

Anurag needed treatment for End-Stage Liver Disease for survival and the campaign was started to fund the same. However, Anurag's parents do not wish to go ahead with the treatment and had left the hospital against medical advice.

After discussing with the family and their agreement, and doctor's consent funds raised for Anurag would be utilized to help another patient named Gauranga Mali who also has deadly genetic liver disease and is due for the surgery next month.

Here is the campaign link for the same:
https://milaap.org/fundraisers/gauranga-mali

As per our Refund Policy under Terms & Conditions (https://milaap.org/about-us/terms-and-conditions), donors have the discretion on how their funds should be used which is as follows:

1. Funds raised for Anurag Nath to be redirected to Gauranga's campaign - https://milaap.org/fundraisers/gauranga-mali

2. You can opt for a refund for the contribution made and we will be happy to help you with the same.

Please reply to this email before the 25th of April, 2019 stating your preference for 1 or 2. After which the funds will automatically be mapped towards Gauranga's campaign.

Our prayers and wishes are with Anurag and his family. Thank you again for your support and generosity.


28th November 2018
Dear Supporters,

Thank you all for your love and support.

Anurag is at home as of now and is on medication. We still haven't found a donor and hence the transplant is getting delayed.

We take him for check ups once a month. The doctors say that he must undergo the transplant as soon as possible.

Please keep him in your prayers.

Thank you all.

Regards,
Vijay (Uncle)
Dear Supporters,

Thank you all for your love and support.

Anurag is at home as of now and is on medication. We still haven't found a donor and hence the transplant is getting delayed.

We take him for check ups once a month. The doctors say that he must undergo the transplant as soon as possible.

Please keep him in your prayers.

Thank you all.

Regards,
Vijay (Uncle)
23rd October 2018
Dear Supporters,

Thank you all for the immense love and support!

I would like to inform you that Anurag is presently at home but his condition has not improved. We are looking for a donor for his bone marrow transplant as no one in the family has the same blood group as his.

Errata:


We are still looking for a prospective donor for the liver transplant, will keep you posted on further developments.

Thank you once again.

Regards,
Vijay (Uncle)
Dear Supporters,

Thank you all for the immense love and support!

I would like to inform you that Anurag is presently at home but his condition has not improved. We are looking for a donor for his bone marrow transplant as no one in the family has the same blood group as his.

Errata:


We are still looking for a prospective donor for the liver transplant, will keep you posted on further developments.

Thank you once again.

Regards,
Vijay (Uncle)
Content Disclaimer: The facts and opinions, expressed in this fundraiser page are those of the campaign organiser or users, and not Milaap.
$7 raised

Goal: $20,000

Beneficiary: Anurag Nath info_outline

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Anonymous donated Rs.500